ICD-11 advisory groups

ICD-11 Revision Steering Group

A Revision Steering Group (RSG), which includes the chairs of the various Topic Advisory Groups (TAGs), serves as the planning and steering authority in the ICD update and revision process. Dr Christopher Chute, MD, Mayo Clinic bioinformatics specialist, chairs the ICD-11 Revision Steering Group.

Revision Steering Group Organizational Structure and Terms of Reference

Revision Steering Group Member biographies

ICD-11 Revision Steering Group Terms of Reference

A Revision Steering Group will serve as the planning and steering authority in the update and revision process. Its terms of reference will focus on the following issues:

– Oversee the revision process and give advice for coordination of workgroups: RSG will review the content of the revision process and will aim to ensure adequate coverage of all chapters and codes to ascertain the input from existing clinical modifications of the ICD and other WHO-FIC members, and maintain continuity between 10th and 11th editions.

– In addition it will see to whether the full scope of health care diseases and related health conditions (such as traditional medicine entries) are congruent with the overall structure. RSG will also make suggestions about the overall progress of the revision process, and synthesis of different inputs including field trials as well as participation from various regions, countries, languages and multiple stakeholders including NGOs.

– Identify uses of the classification and ensure that the revision process addresses the needs of users: RSG will ensure that the main uses of ICD for mortality and morbidity are maintained, and oversee proposals for other uses the classification; and preserve coherence and consistency of the description of entities between the interlinked versions of ICD for Primary Care, Clinical care and Research

– Identify basic taxonomic and ontological principles: RSG will observe the consistency and coherence of basic taxonomic and ontological principles across the overall revision process including:

. Key definitions: disease, disorder, syndrome, sign, symptom, trauma, external cause…

. Separation of disability and joint use with ICF

. Attributes: etiology, pathophysiology, intervention response, genetic base …

. Linkages to other classifications and ontologies

– Generate suggestions to resolve problems and ways to field test options as necessary: RSG will make suggestions to solve problems or conflicts arising across different proposals, and may make suggestions for field trials to gather empirical data for their solution. This area of function may include comorbidity coding, inference of causality in coding rules, and indexing.

– Develop plans and tools for transition from ICD-10 to ICD-11: Identify requirements for users to adopt ICD-11 including coding guidelines, cross walks, electronic tools, and educational materials.

The Revision Steering Group will communicate on an ongoing basis by email, have monthly telephone conference calls, and will convene at least twice annually for an in-person meeting. The composition of the Revision Steering Group will be as follows:

1. the chairs of the Topic Advisory Groups in the Revision Process

2. Representatives of the WHO-FIC Network (chairs of the Update and Revision; Family Development Committee, and Planning Committees)

3. Other invited terminology, classification and public health experts

4. Responsible WHO officers

The Revision Steering Group may invite consultants and other members of the Topic Advisory Groups and related workgroups as necessary to take part in their meetings.

Topic Advisory Groups (TAGs)

A number of ICD-11 Topic Advisory Groups (TAGs) have been set up, under Managing Editors (TAGMEs), who report to the Revision Steering Group.

         Workflow 2 diagram

         ICD-11 Project Plan March 2010

It is understood that TAG Managing Editors would be expected to network to recruit reviewers with interest and professional expertise in the categories which Managing Editors have been allocated to work on, to act as external peer reviewers for the drafting of content and reviewing of proposals.

136 scientists from 36 countries and all WHO regions are contributing to the Topic Advisory Groups. See these PDFs for TAG members:

Topic Advisory Groups

Topic Advisory Group for Internal Medicine Last updated: 07.08.10
Topic Advisory Group for External Causes
Topic Advisory Group for Rare Diseases

Topic Advisory Group for Muskuloskeletal Last updated: 20.01.10
Topic Advisory Group for Dermatology Last updated: 02.02.10
Topic Advisory Group for Ophthalmology Last updated: 20.01.10
Topic Advisory Group for Mental Health Last updated: 03.02.10
Topic Advisory Group for Neurology Last updated: 04.02.10

See ICD Revision Topic Advisory Groups page (on WHO website) for

Working Groups for Internal Medicine
Terms of Reference for the Topic Advisory Groups

For the purpose of revising ICD-10 Mental and Behavioural disorders, the following groups were established:

International Advisory Group (AG) for the Revision of ICD-10 Mental and Behavioural Disorders
Global Scientific Partnership Coordination Group Terms of Reference and members
GSPC Group Members’ Details
Stakeholder Input and Partnership Coordination Group
Global Health Practice Network (GHPN)
DSM-ICD Harmonization Coordination Group

International Advisory Group (AG) for the Revision of ICD-10 Mental and Behavioural Disorders

The International Advisory Group (AG) for the Revision of ICD-10 Mental and Behavioural Disorders was constituted by the WHO with the primary task of advising WHO on all steps leading to the revision of the mental and behavioural disorders classification in ICD-10 in line with the overall revision process. A list of participants is provided in the Annexes to Advisory Group meeting Summary Reports or open reports, below.

Summary Reports of meetings held by the International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders [All in PDF format]

1st Meeting: 11 – 12 January 2007, Geneva |
2nd Meeting: 24 – 25 September 2007, Geneva |
3rd Meeting: 11 – 12 March 2008, Geneva |
4th Meeting 1 – 2 December 2008, Geneva |

[A fifth meeting took place on December 1-3, 2009. A Summary Report for that meeting was anticipated in early 2010, but no report appears to have been made publicly available.]

No reports of further meetings

It has not been possible to establish whether any further meetings, either face-to-face or tele-conferencing, of the Advisory Group or the DSM-ICD Harmonization Coordination Group (or any working group which might have replaced it) have been held since December 2009.

The International Advisory Group is co-ordinated by Senior Project Officer, Dr Geoffrey Reed, Ph.D., seconded to the Department of Mental Health and Substance Abuse through IUPsyS (International Union for Psychological Science).

Meetings are chaired by Steven Hyman, MD, Harvard University, Cambridge, MA, a former Director of the National Institute of Mental Health (NIMH) and DSM-5 Task Force Member.

The WHO Department of Mental Health and Substance Abuse, which is overseeing the revision of Chapter V (Mental and Behavioural Disorders), is also managing the technical part of the revision of Chapter VI (Diseases of the Nervous System).

The lead WHO Secretariat for the Topic Advisory Group (TAG) Neurology (Chapter VI Diseases of the Nervous System) is Dr Tarun Dua, Management of Mental and Brain Disorders, Department of Mental Health and Substance Abuse, WHO, Geneva. TAG Neurology is chaired by Dr Raad Shakir, Imperial College London.

The ICD Revision Topic Advisory Groups (TAGs) that are the primary focus of this site are:

Topic Advisory Group for Neurology
Topic Advisory Group for Mental Health

The following section was compiled in September 2009 using information provided by Dr Geoffrey Reed, Senior Project Officer, Department of Mental Health and Substance Abuse, WHO, Geneva, and is published with permission. The make-up of Advisory Groups as listed in the PDFs on the WHO site does not appear to have changed since this information was provided.

Information on the new International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders and the Topic Advisory Group (TAG) for Neurology

The International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders was constituted by the WHO for a period of two years (2007 – 2008) with the primary task of advising the WHO on all steps leading to the revision of the mental and behavioural disorders classification in ICD-10, in line with the overall ICD revision process.

The initial period of operation has now expired and the group has been reconstituted and reappointed for the next two year period. The appointment of the Harmonization Group and other working groups reporting to the Advisory Group has also now expired, and new working groups will be appointed based on the current needs of the revision.

The Advisory Group is co-ordinated by Senior Project Officer, Dr Geoffrey M Reed, PhD, who is seconded to the Department of Mental Health and Substance Abuse, WHO, Geneva, through the IUPsyS (International Union for Psychological Science). The Department of Mental Health and Substance Abuse will also be managing the technical part of the revision of Diseases of the Nervous System (currently Chapter VI), as it is doing for Chapter V.

The new Advisory Group expands and makes some changes to its composition in order to obtain better geographical representation and also based on the nature of the tasks of the next period of the revision process.

Topic Advisory Group for Mental Health  [PDF 91kb] Last updated: 02.03.10

The members of the new International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders (currently ICD-10 Chapter V)

Steven Hyman (Chair), Harvard University, Cambridge, Massachusetts, USA*

José Luís Ayuso-Mateos, Universidad Autónoma de Madrid, Madrid, Spain

Alan Flisher, University of Cape Town, Rondebosch, South Africa

Wolfgang Gaebel, Heinrich-Heine University, Düsseldorf, Germany

Oye Gureje, University College Hospital, Ibadan, Nigeria

Assen Jablensky, University of Western Australia, Crawley, Australia

Brigitte Khoury, American University of Beirut Medical Center, Beirut, Lebanon

Anne Lovell, Institute National de la Santé et de la Recherche Médicale, Paris, France

Maria Elena Medina-Mora, Instituto Nacional de Psiquiatria Ramon de la Fuente, México, D.F., Mexico

Afarin Rahimi, Tehran University of Medical Sciences, Tehran, Iran

Norman Sartorius, Geneva, Switzerland

Pratap Sharan, All India Institute of Medical Sciences, New Delhi, India

Pichet Udomratn, Prince Songkha University, Hat Yai, Thailand

Xiao Zeping, Shanghai Mental Health Center, Shanghai, China

WHO Secretariat:

Benedetto Saraceno
Shekhar Saxena
Geoffrey Reed

*Steven E Hyman, MD is a former member of the APA’s DSM-5 Task Force

The professional and scientific organisations that have been asked to appoint representatives to the International Advisory Group for Mental and Behavioural Disorders, and the names of their representatives, are:

International Association of Child and Adolescent Psychiatry and Allied Professions (IACAPAP):
Per-anders Rydelius, Karolinska Institutet, Stockholm, Sweden

International Council of Nurses (ICN):
Tesfamicael Ghebrehiwet, International Council of Nurses, Geneva, Switzerland

International Federation of Social Workers (IFSW):
Dr Sabine Bährer- Kohler, Psychiatric University Clinic, Basel, Switzerland

International Union of Psychological Science (IUPsyS):
Ann D. Watts, Entabeni Hospital, Durban, South Africa

World Organization of National Colleges, Academies, and Academic Associations of General Practitioners/Family Physicians (WONCA):
Michael Klinkman, University of Michigan, Ann Arbor, Michigan, USA

World Psychiatric Association (WPA):
Mario Maj, University of Naples, Naples, Italy

All of these organisations were also represented on the previous Advisory Group with the exception of IACAPAP.

Topic Advisory Group for Neurology

The lead WHO Secretariat for TAG Neurology is Dr Tarun Dua, Management of Mental and Brain Disorders, Department of Mental Health and Substance Abuse, WHO, Geneva. Email: duat@who.int

Dr Dua co-ordinated the Atlas Multiple Sclerosis Resources in the World 2008, a collaboration between the World Health Organization and the Multiple Sclerosis International Federation.

Dr Dua was a co-author of the World Health Organization publication Neurological Disorders: Public Health Challenges, 2006 or download by Chapters in PDF format

Topic Advisory Group for Neurology [PDF 90kb] Last updated: 04.02.10

The members of the Topic Advisory Group (TAG) for Neurology are:

Raad Shakir (Chair), Imperial College London, London, UK

Donna Bergen, Rush University Medical Center, Chicago, Illinois, USA

Pierre Bill, Inkosi Ambert Luthuli Central Hospital, Durban, South Africa

Mandaville Gourie-Devi, Institute of Human Behaviour and Allied Sciences, New Delhi, India

Mitsuru Kawamua, School of Medicine, Showa University, Tokyo, Japan

Marco Medina, National Autonomos University of Honduras, Tegucigalpa, Honduras

Mohamad Mikati, American University of Beirut Medical Center, Beirut, Lebanon

The professional and scientific organisations that have been asked to appoint representatives to the Topic Advisory Group for Neurology, and the names of their representatives, are:

Alzheimer’s Disease International:
Murat Emre, Istanbul Faculty of Medicine, Istanbul, Turkey

International Brain Research Organization:
Krister Kristensson, Karolinska Institutet, Stockholm, Sweden

International Child Neurology Association:
Marc Patterson, Mayo Clinic, Rochester, Minnesota, USA

International Headache Society:
Jes Olesen, University of Copenhagen, Copenhagen, Denmark

International League Against Epilepsy:
Ettore Beghi, Istituto “Mario Negri”, Milan, Italy

International Neuropsychological Society:
Andreas Monsch, University Hospital Basel, Basel, Switzerland

Movement Disorders Society:
Kapil D Sethi, Medical College of Georgia, Augusta, Georgia, USA

Multiple Sclerosis International Federation:
Alan J. Thompson, Director, National Hospital for Neurology & Neurosurgery, London, UK

World Federation of Neurosurgical Societies:
Marc Levivier, Centre Romand de Neurochirurgie, Lausanne, Switzerland

World Federation of Neurology:
Johan Aarli, University of Bergen, Bergen, Norway

World Stroke Organization:
Bo Norrving, Lund University, Lund, Sweden

I am not aware of any meeting summaries, reports or updates published so far by TAG Neurology. The Topic Advisory Group that appears to publish the most information on its progress is the Topic Advisory Group for Rare Diseases which has its own web platform.

Last updated: February 6, 2012

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