Coalition 4 ME/CFS – Letter to the Medical Community

Coalition 4 ME/CFS – Letter to the Medical Community

Post #109 Shortlink:

From Mike Munoz, via Co-Cure | October 25, 2011

On July 15, the Coalition 4 ME/CFS submitted a written proposal to the ICD-9-CM Coordination and Maintenance Committee to restore CFS to Chapter 6 “Diseases of the Nervous System” code G93.3 in the ICD-10 Clinical Modification (ICD-10-CM) in the US.

This action follows the September 2004, August 2005 and May 2011 recommendations of the federally-appointed Chronic Fatigue Syndrome Advisory Committee (CFSAC). In each case, the committee recommended that CFS be in the neurological classification in the ICD-10-CM, in line with the rest of the world.

On September 14, the Coalition 4 ME/CFS made an oral presentation to the committee and responded to concerns expressed by audience members.

The coalition has written a letter to clinicians, researchers and other medical professionals outlining the National Center for Health Statistics (NCHS) and the coalition option for modification

PDF: Coalition for ME/CFS Letter to the Medical Community

We have also included a sample letter for medical professionals and the public to give input rejecting NCHS’s option #2 in favor of the coalition’s proposal option

Html: Coalition for ME/CFS Sample Letter

We are asking medical professionals to comment on this important issue before the comment period ends on November 18.

Medical professionals wanting to add their signature to the coalition’s prepared letter to NCHS that will be submitted prior to the November 18 deadline can contact Mike Munoz at

More information concerning the coalition and the ICD initiative can be found at





The PDF of the Letter to the Medical Community can also be downloaded from Dx Revision Watch here: Coalition 4 ME/CFS Letter to Medical Community


Related material:

Comments on proposals need to be submitted by November 18.

Comments from stakeholders, preferably via email, should be submitted to:

Donna Pickett RHIA, MPH
Medical Classification Administrator
National Center for Health Statistics – CDC
3311Toledo Road Hyattsville, MD 20782
Via email:

You can download an Audio of the September 14 NCHS meeting here:

[Note this is a large Zipped file.  The section for discussions on CFS coding starts at 2 hours 27 minutes in from start and ends at 3 hours 02 minutes.]


1] Full NCHS meeting Proposals document:

2] Full NCHS meeting Summary document:

3] Post: Coding CFS in ICD-10-CM: CFSAC and the Coalition4ME/CFS initiative

4] Post: Extracts: ICD-9-CM Coordination and Maintenance Committee Meeting September 14, 2011 (Coding of CFS in ICD-10-CM)


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