Category Archives: ICD on YouTube

WHO releases ICD-11 Beta drafting platform

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WHO releases ICD-11 Beta drafting platform

Post #170 Shortlink: http://wp.me/pKrrB-28K

Yesterday, May 14, the World Health Organization (WHO) announced the launch of the ICD-11 Beta drafting platform.

Press Release here and below.

This publicly viewable platform replaces the Alpha drafting platform that has been viewable since mid 2011. ICD-11 Revision Topic Advisory Groups are using a separate drafting platform with greater functionality than the platform launched yesterday.

Interested stakeholders can register for increased access and to interact with the Beta drafting platform.

In terms of functionality, the Beta platform does not appear to incorporate any additional features over the Alpha. 

In terms of population of content, some entities have text populated for Definitions, others are still waiting for provisional definitions. Some entities have very few “Content Model” parameters listed, others have the following: Parents; Definition; Synonyms; Exclusions; Narrower Terms; Causal Mechanisms; Body Site.

It’s not evident how many of the proposed 13 “Content Model” parameters that describe an ICD-11 entity term will eventually be populated for any given entity. The original list of 13 ”Content Model” parameters has been modified since early 2011, but no new documentation has been publicly released that sets out the new parameters.

More information on the Beta drafting platform here:

http://www.who.int/classifications/icd/revision/en/

The International Classification of Diseases 11th Revision is due by 2015

Participate in the ICD Revision

Beta phase participants will have the opportunity to:

• Make Comments
• Make Proposals
• Propose definitions of diseases in a structured way
• Participate in Field Trials
• Assist in translating ICD into other languages

Video invitation to participate
Frequently Asked Questions About ICD-11
ICD Information Sheet

WHO video invitation from Dr Marie-Paule Kieny on ICD-11

For the first time, experts in the public health community who work with patient diagnosis and treatment have an opportunity to contribute to the development of the next version of the ICD. This is WHO’s publication that ensures all aspects of the health community refer to diseases and health conditions in a consistent way.

WHO is calling on experts, health providers and stakeholders from around the world to participate in the 11th revision process. The final ICD-11 will be released in 2015.

With your help, this classification will be more comprehensive than ever before.

 

The Beta drafting platform can be found here:

Linearizations:

http://apps.who.int/classifications/icd11/browse/l-m/en

Foundation Component:

http://apps.who.int/classifications/icd11/browse/f/en#

User Guide:

http://apps.who.int/classifications/icd11/browse/Help/en

Listing for Chronic fatigue syndrome:

http://apps.who.int/classifications/icd11/browse/f/en#/http%3a%2f%2fwho.int%2ficd%23G93.3

WHO Press Release

May 2102

http://www.who.int/features/2012/international_classification_disease/en/

WHO seeks health experts’ input for 11th International Classification of Diseases

For the first time, experts in the public health community who work with patient diagnosis and treatment have an opportunity to contribute to the development of the next version of the International Classification of Diseases (ICD), which is WHO’s publication that ensures all members of the health community refer to diseases and health conditions in a consistent way.

WHO/Jim Holmes

WHO is releasing the beta version of what will be ICD-11 on a wiki-type platform that allows stakeholder comments to be added after peer review. The final ICD-11 will be released in 2015.

WHO encourages anyone interested to comment to develop a more comprehensive classification.

Foundation for reliable health data

The ICD is the foundation for the identification of health trends and statistics globally. Receiving input from health experts will greatly improve the representation from current medical practice and create insight from a broader diversity of medicine.

“Literally this is what doctors use to diagnose a patient,” says Tevfik Bedirhan Ustun, coordinator in the Department of Health Statistics and Information Systems. “It is how we define the cause of death when a person dies. In research, it is how we classify health problems based on evidence.”

The ICD is the gold standard for defining and reporting diseases and health conditions. It allows the world to compare and share health information using a common language.

In addition to health providers, the ICD is a key tool used by epidemiologists to study disease patterns, insurers, national health programme managers, data collection specialists, and others who track global health progress and how health resources are spent.

ICD-11 innovations

Using advances in information technology, this ICD revision will allow users to collect data on cause of death, advances in science and medicine, emerging diseases and health conditions, and compare information across the globe with more ease and diversity in the service of public health and clinical reporting.

Some of the key new features of the 11th version will include:

• a new chapter on traditional medicine, which constitutes a significant part of health care in many parts of the world;
• it will be ready to use with electronic health records and applications;
• it will updated through the development phase to reflect new knowledge as it is added to the classification; and
• it will be produced in multiple languages through the development phase.

Further coverage:

http://www.dailypioneer.com/nation/65415-who-seeks-inputs-for-key-disease-database.html

WHO seeks inputs for key disease database

Tuesday, 15 May 2012 00:29
Pioneer News Service | New Delhi

The World Health Organisation (WHO) in a maiden initiative has invited experts and users to contribute online to the development of its next version of the International Classification of Diseases (ICD) capturing mortality and morbidity data.

The world’s standard tool provides a picture of the general health of countries and populations and its 11th version is now being developed through an innovative, collaborative process to be released in 2015.

“This is for the first time WHO is calling on experts and users to participate in the revision process through a web-based platform. The outcome will be a classification that is based on user input and needs,” a WHO official said.

Users include physicians, nurses, other providers, researchers, health information managers and coders, health information technology workers, policy-makers, insurers and patient organisations.

WHO will soon be releasing the beta version of what will be ICD-11 on a wiki-type platform that allows stakeholder comments to be added after peer review.

All Member States are expected to use the most current version of the ICD for reporting death and disease statistics (according to the WHO Nomenclature Regulations adopted by the World Health Assembly in 1967), the official added.

Regarding the steps for participating, he elaborated that experts and stakeholders will have to register for a participant account on the web portal which will be open for comments over the next three years and accepted changes will be reflected immediately.

Some of the key new features of the 11th version will include a new chapter on traditional medicine, which constitutes a significant part of health care in many parts of the world and ready to use with electronic health records and applications.

The ICD is translated into 43 languages and is used by all 117 member countries. The ICD holds importance as it provides a common language for reporting and monitoring diseases. This allows the world to compare and share data in a consistent and standard way – between hospitals, regions and countries and over periods of time. It facilitates the collection and storage of data for analysis and evidence-based decision-making, the official said.

CFSAC November 2011 meeting: videos, presentations and coding of CFS in ICD-10-CM

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CFSAC November 2011 meeting: videos, presentations and Day One Agenda item:

International Classification of Diseases – Clinical Modification (ICD-CM): Presentation by Donna Pickett, RHIA, MPH, National Center for Health Statistics (NCHS)

Post #118 Shortlink: http://wp.me/pKrrB-1xk

The Chronic Fatigue Syndrome Advisory Committee (CFSAC) provides advice and recommendations to the Secretary of Health and Human Services via the Assistant Secretary for Health of the U.S. Department of Health and Human Services on issues related to chronic fatigue syndrome (CFS).

The two day fall meeting of the Chronic Fatigue Syndrome Advisory Committee (CFSAC) took place on Tuesday, November 8 and Wednesday, November 9, 2011 at a new venue – the Holiday Inn Capitol, Columbia Room, 550 C Street, SW, Washington, DC.

No live video streaming

In May 2009, a precedent was set for the entire proceedings of CFSAC meetings to be streamed as real-time video with videocasts and auto subtitling posted online a few days after the meetings have closed.

Prior to the November meeting, CFSAC Committee Support Team had clarified that the commitment to providing real-time video streaming could not be met (later said to be due to budgetary constraints) and that a phone link would be provided instead – an option not available to those of us outside the US – and that a high quality video of the two day proceedings would be posted within a week. In the event, videos for Day One and Day Two of the meeting were not posted within this timeframe.

 

International Classification of Diseases  – Clinical Modification (ICD-CM):
Presentation by Donna Pickett, RHIA, MPH, National Center for Health Statistics (NCHS)

The Agenda items that have the most relevance for Dx Revision Watch site are the presentation on Day One by Donna Pickett (NCHS) and the Committee’s formulation on Day Two of a revised CFSAC Recommendation to HHS on the coding of CFS in the forthcoming ICD-10-CM.

The video for that section of the meeting wasn’t published on YouTube until November 17, just one day prior to the closing date for submission of comments on the proposals for the coding of CFS in ICD-10-CM put forward by the Coalition4ME/CFS for NCHS consideration and an alternative option presented by NCHS at the September 14, 2011 meeting of the ICD-9-CM Coordination and Maintenance Committee [1].

This meant that many of those compiling comment for submission before the November 18 deadline who had not attended the CFSAC meeting in person were unable to use Ms Pickett’s presentation to inform their submissions as they were not aware that the videos for Day One had been published or would have already submitted their comments.

Ms Pickett’s presentation slides can be viewed here in PDF format: PowerPoint Slides

 

The video of Ms Pickett’s presentation can be viewed below or on YouTube:

Uploaded by WomensHealthgov on 17 Nov 2011
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 1, November 8, 2011. 9am to 11:15am. Opening Remarks, International Classification of Diseases-Clinical Modification (ICD-CM), and Public

 

During her presentation, Ms Pickett had outlined the two proposals under consideration (Option 1 and Option 2) but the slide for the NCHS’s suggestion (Option 2) omits the suggested Excludes.

Note also that the presentation slides did not set out that NCHS has suggested the inclusion term “Chronic fatigue syndrome NOS” under a suggested subcode, “G93.32 Chronic fatigue syndrome”. 

I consider Option 2 (NCHS) to be problematic for a number of reasons and I was unable to support the NCHS’s suggestion. I could not support:

• the suggested revision of the existing ICD Title term “G93.3 Postviral fatigue syndrome” to “G93.3 Postviral and other chronic fatigue syndromes”;

• the inclusion of term “Chronic fatigue syndrome NOS” included under “G93.32 Chronic fatigue syndrome”;

• the specification of class 2 exclusions, that is, “Excludes2″ rather than “Excludes1″.

 

If consideration were being given to the creation of separate subcodes or child categories to a revised parent G93.3 class, then I would prefer to see three discrete subcodes under G93.3, one for each term, in the order: G93.31 Postviral fatigue syndrome; G93.32 Myalgic encephalomyelitis (Benign); G93.33 Chronic fatigue syndrome under an alternative term to the suggested parent term, “G93.3 Postviral and other chronic fatigue syndromes”.

Given that I consider NCHS Option 2 to be problematic and given that no alternatives appear to be currently under consideration by NCHS, I submitted a comment supporting Option 1 (Coalition4ME/CFS), with two caveats:

a) That any excludes specified are Excludes1 not Excludes2

b) That consideration is given by NCHS to specifying two exclusion terms beneath G93.3

Excludes1 chronic fatigue, unspecified (R53.82)
                 neurasthenia (F48.8) 

 

I have reviewed the September ICD-9-CM Coordination and Maintenance Committee meeting audio [5] and do not consider there had been adequate discussion at the meeting of the implications for the inclusion of a “Chronic fatigue syndrome NOS (Not Otherwise Specified)” coded to a suggested subcode “G93.32 Chronic fatigue syndrome”.

The implications for this suggestion do not appear to have been discussed publicly at the November CFSAC meeting nor were the potential implications for the use of “Excludes2″ class excludes raised during public discussion.

 

New CFSAC November 2011 Meeting Recommendation

The Minutes for the November CFSAC meeting and the approved Recommendations formulated at that meeting are not yet published on the CFSAC site. [Update @ March 27, 2012: Minutes are available here ]

At the May 2011 meeting, following discussion of the ICD-10-CM CFS coding issue and concerns for the current proposals of the DSM-5 Somatic Symptom Disorders work group, the following Recommendation had been proposed by Dr Lenny Jason and voted unanimously in favour of by CFSAC committee:

 http://www.hhs.gov/advcomcfs/recommendations/05112011.html 

The CFSAC May 2011 Recommendation:

CFSAC rejects current proposals to code CFS in Chapter 18 of ICD-10-CM under R53.82: Chronic fatigue, unspecified > Chronic fatigue syndrome NOS.

CFSAC continues to recommend that CFS should be classified in ICD-10-CM in Chapter 6 under “diseases of the nervous system” at G93.3, in line with ICD-10 and ICD-10-CA (the Canadian Clinical Modification), and in accordance with the Committee’s recommendations of August 2005.

CFSAC considers CFS to be a multi-system disease and rejects any proposals to classify CFS as a psychiatric condition in US disease classification systems. (Note: no disease classification system under HHS’ control proposes to move or to include CFS in or among psychiatric conditions.)

Following committee discussions at the November meeting, this May 2011 Recommendation was reviewed and expanded on to reflect the developments at the September 14 meeting of the ICD-9-CM Coordination and Maintenance Committee and CFSAC committee’s views on the two Options that have been proposed and are under consideration.

CFSAC committee member and disability attorney, Steven Krafchick, read out a motion for a new Recommendation which was proposed and voted unanimously in favour of:

The CFSAC November 2011 Recommendation:

CFSAC considers CFS to be a multi-system disease and rejects any proposal to classify CFS as a psychiatric condition in the US disease classification systems.

CFSAC rejects the current classification of CFS in Chapter 18 of ICD-10-CM under R53.82 – chronic fatigue,  unspecified > chronic fatigue syndrome Not Otherwise Specified.

CFSAC continues to recommend that CFS should be classified in ICD-10-CM in Chapter 6 under “Diseases of the nervous system” at G93.3, in line with ICD-10 (the World Health Organization) and ICD-10-CA (the Canadian Clinical Modification), and in accordance with the Committee’s recommendations of August 2005 and May 2011.

CFSAC rejects the National Center for Health Statistics Option 2 and recommends that CFS remain in the same code and the same subcode as [benign] myalgic encephalomyelitis because CFS includes both viral and non-viral triggers.

CFSAC recommends that an “Excludes1″ be added to G93.3 for chronic fatigue - R53.82 and neurasthenia – F48.0.* CFSAC recommends that these changes be made in ICD-10-CM prior to its roll out in 2013.

*Ed: Note: CFSAC committee has been advised that the discrete code for Neurasthenia in ICD-10-CM Chapter 5 is F48.8 not F48.0, as had been read out at the meeting. I am informed that the new Recommendation is being amended.

 

Watch a video clip for the Recommendation, here:

Uploaded by coalition4mecfs on 17 Nov 2011
CFSAC Committee Recommendation on the ICD-10 -11/9/2011

 

Watch discussion of Recommendation and vote here: [1 hr 12 mins from start]

CFSAC November 9, 2011, 1:30 pm – 4:30 pm

Uploaded by WomensHealthgov on 18 Nov 2011
Chronic Fatigue Syndrome Advisory Committee (CFSAC) Meeting, Day 2, November 9, 2011. 1:30pm to 4:30pm. Public Comment and Committee Discussion to Finalize Recommendations

 

Request for clarification 

During her presentation to CFSAC, in response to a query from the floor, Ms Pickett had clarified that the comments being received by NCHS were not being reviewed until after the closing date for submissions (November 18) and that a decision about the proposals would be made in December. At the time of publication, no decision has been made public and it is not known whether any decision has been arrived at.

On December 18, I emailed Ms Pickett and asked if she could advise me by what date a decision is expected to have been made following review and consideration of the comments on proposals for the coding and chapter placement of Chronic fatigue syndrome for ICD-10-CM that were received by her office between September 14 and November 18.

On the CDC website it states that:

“The ICD-9-CM Coordination and Maintenance Committee’s role is advisory. All final decisions are made by the Director of NCHS and the Administrator of CMS. Final decisions are made at the end of the year and become effective October 1 of the following year.”

I also asked Ms Pickett if she would clarify if this meant that any decision arrived at by the Coordination and Maintenance Committee is advisory only and whether a final decision would be made by the Director of NCHS and Administrator of CMS; if this is the case, by what date would their decision expect to be made and by what means would a decision be made public.

I will update when I have a response from Ms Pickett and/or when any decision has been reached and announced.

 

Key documents from the November CFSAC meeting

CFSAC Meetings Page

November 8-9, 2011 CFSAC Meeting Agenda

Presentations

Videos of proceedings

Day One: Tuesday, November 8, 2011

CFSAC November 8, 2011; 9:00 – 11:15 am |  Presentation by Donna Pickett, NCHS  Presentation slides 
CFSAC November 8, 2011; 11:30 am – 1:00 pm |
CFSAC November 8, 2011, 2 pm – 4 pm |
CFSAC November 8, 2011, 4 pm – 5 pm |

Day Two: Wednesday, November 9, 2011

CFSAC November 9, 2011, 9 am – 10:30 am | 
CFSAC November 9, 2011, 10:45 am – 1:15 pm |
CFSAC November 9, 2011, 1:30 pm – 4:30 pm |  Discussion of wording of Recommendation at 1hr 12mins

Presentations

Tuesday, November 8, 2011

Donna Pickett, CDC  International Classification of Diseases – Clinical Modification (PDF– 91.8 KB)

Future Interdisciplinary Research for ME/CFS that Require a Variety of Scientific Disciplines (PDF –  1,008 KB)

Wednesday, November 9, 2011

International Classification of Functioning, Disability and Health: Application and Relevance to Chronic Fatigue Syndrome (PDF – 1 MB)
CDC Report for CFSAC – CFS Activities Since May 2011 (PDF – 208 KB)
Minimum Data Elements for Research Reports on CFS (PDF – 1,016 KB)
NIH Report for CFSAC (PDF – 241 KB)

Public Testimony 

See this CFSAC page for list of Public Testimony and PDFs of testimonies for

Day One: Tuesday, November 8, 2011
Day Two: Wednesday, November 9, 2011

See this CFSAC page for PDFs of Written Testimony Received Prior to the Meeting Date.

Marly Silverman’s Public Testimony on behalf of the Coalition4ME/CFS on the issue of the proposed coding of CFS in the forthcoming US specific ICD-10-CM:

http://www.hhs.gov/advcomcfs/meetings/presentations/publictestimony_201111_sillverman.pdf

 

The two proposals

The Coalition4ME/CFS had submitted a proposal to NCHS, prior to the September meeting, requesting that Chronic fatigue syndrome be deleted as an inclusion term under code R53.82 Other malaise and fatigue (Chapter 18 Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified) and that the term be added as an inclusion term under code G93.3 Postviral fatigue syndrome (Chapter 6 Disorders of the nervous system).

The Coalition 4 ME/CFS had also requested that their proposal be considered for October 1, 2012 so that the change occurs prior to the October 1, 2013 implementation date of ICD-10-CM even though the condition is not a new disease.

Ed: Note: Option 1 (Proposal by the Coalition4ME/CFS) does not display the term Benign myalgic encephalomyelitis under G93.3 Postviral fatigue syndrome. This is because no change to the placement of this term was being requested by the Coalition4ME/CFS, that is, there was no proposal to Add, Delete or Revise the term Benign myalgic encephalomyelitis other than a request that consideration be given to placing the ICD-10 descriptor “Benign” at the end of the term, as ”Myalgic encephalomyelitis (Benign)”.

[Image source: Page 11, Diagnosis Agenda: ICD-9-CM Coordination and Maintenance Committee Meeting September 14, 2011  http://www.cdc.gov/nchs/data/icd9/TopicpacketforSept2011a.pdf ]

 

Ed: Note: At the September 14, 2011 ICD-9-CM Coordination and Maintenance Committee meeting, there had been some brief discussion of whether class 1 excludes (Excludes1) were more appropriate than class 2 excludes (Excludes2). Clarification of the difference between the terms follows:

Source: ICD-10-CM TABULAR LIST of DISEASES and INJURIES, Instructional Notations 

Excludes Notes

The ICD-10-CM has two types of excludes notes. Each note has a different definition for use but they are both similar in that they indicate that codes excluded from each other are independent of each other.

Excludes1

A type 1 Excludes note is a pure excludes. It means “NOT CODED HERE!” An Excludes1 note indicates that the code excluded should never be used at the same time as the code above the Excludes1 note. An Excludes1 is for used for when two conditions cannot occur together, such as a congenital form versus an acquired form of the same condition.

Excludes2

A type 2 excludes note represents “Not included here”. An excludes2 note indicates that the condition excluded is not part of the condition it is excluded from but a patient may have both conditions at the same time. When an Excludes2 note appears under a code it is acceptable to use both the code and the excluded code together.

 

References

[1] Meeting materials September 14, 2011 meeting of the ICD-9-CM Coordination and Maintenance Committee 

[2] Coding CFS in ICD-10-CM: CFSAC and the Coalition4ME/CFS initiative

[3] Extracts from Diagnosis Agenda: ICD-9-CM Coordination and Maintenance Committee Meeting September 14, 2011 (Coding of CFS in ICD-10-CM)     [Post sets out proposals: Option 1 from Coalition4ME/CFS and Option 2 from NCHS, which are also set about below.]

[4] Extracts: ICD-9-CM Coordination and Maintenance Committee Meeting Summary of Diagnosis Presentations September 14, 2011 (CFS Coding)

[5] Audio of September 14 NCHS ICD-9-CM meeting http://www.cms.gov/ICD9ProviderDiagnosticCodes/Downloads/091411_Meeting_Audio.zip

[Note this audio downloads as a large Zipped file.  The section for discussions on CFS coding starts at 2 hours 27 minutes in from start and ends at 3 hours 02 minutes.]

ICD-11 struggling to meet targets for release of Beta Draft in May

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ICD-11 Revision Steering Group struggling to meet targets for release of Beta Draft platform in May

Post #69 Shortlink: http://wp.me/pKrrB-ZB

The information in this mailing relates only to ICD-11, the forthcoming revision of ICD-10 that is scheduled for completion and pilot implementation in 2014/15. It does not apply to the forthcoming US specific Clinical Modification of ICD-10, known as ICD-10-CM, or to other Clinical Modifications of ICD-10, already in use.

Revision of the WHO’s ICD-10, the version of ICD in current use in the UK and over 110 countries worldwide, has been underway since 2007. The implementation date has already been shifted from 2012 to 2014/15.

A Beta Draft platform for ICD-11 had been scheduled for readiness by April, this year, for public release in May.

An ICD Revision Beta Requirements document states, “The Beta Phase will be open to [the] general public in May 2011 to enable structured input by interested parties subject to peer-review by relevant Technical Advisory Groups.”

But ICD Revision is evidently struggling to keep this project on track.

In October, last year, the Revision Steering Group’s “iCamp2″ meeting acknowledged that a considerable amount of work needed to be done if ICD Revision if targets for a May 2011 release of a Beta Draft platform were going to be met.

According to an October iCamp2 PowerPoint presentation, Frequent Criticisms, and iCamp2 meeting videos, targets for the population of content for the Alpha Draft had not been reached: less than 80% of the Terminology Definitions had been uploaded to the iCAT and less than the 20% target for full Content Model completion for the thousands of diseases and disorders classified within ICD had been met.

The Revision Steering Group (RSG) identified a number of barriers to keeping this very technically ambitious project on track: lack of funding; the amount of time required for drafting definitions and population of textual content according to the complex ICD-11 “Content Model”; recruitment of external experts for reviewing proposals and generating content; familiarising the various Topic Advisory Group (TAG) members with informatics and the functionality of the iCAT (the collaborative authoring platform through which ICD-11 is being drafted); the paucity of face-to-face meetings for TAG managing editors and workgroup members, (scattered across the globe and undertaking these roles, by electronic means, in addition to their professional commitments), and difficulties facilitating interaction between the various Topic Advisory Groups where diseases overlap with other chapters.

If ICD Revision is already struggling to maintain targets, motivation and interaction between its various Topic Advisory Groups, then management of the project once the Beta drafting phase is reached and the process opened up to [the projected] thousands of stakeholders is going to present ICD-11 RSG and TAG managing editors with considerable challenges. The ICD-11 iCamp YouTube commentaries have an air of brittle optimism about them.

I have already predicted that come May 2011, we might anticipate some scaling back of plans and/or a possible shift in the release date for the Beta drafting platform (and potentially a further shift in the final ICD-11 implementation date) in response to recognition that the WHO may have significantly overestimated its capacity for obtaining funding and resources to fulfil this most ambitious vision by 2014.

 

Report of a WHO-FIC (WHO Family of International Classifications) Council conference call

http://www.who.int/classifications/network/Council_report_2011_16Feb.pdf

or open  here on Dx Revision Watch site.

This document is the Report of a WHO-FIC Council conference call which took place between 14:00-15:30 Geneva Time, on Wednesday, February 16, 2011. It confirms that ICD Revision is debating whether to go public in May with a Beta drafting platform that falls short of targets for completion or whether to revise its schedule.

From Page 6

“ICD-11 Beta Draft and Timeline

“In the context of the review of preparations for the ICD-11 Beta release, there was a set of arguments for and against a postponement of the beta release.

“The status was summarized as in the slide below.

“In discussion the WHO FIC Council Members commented:

• It is essential to have a good product that goes out to the general public.
• Extra time is needed for the cross-cutting TAGs as most substantive review is starting lately.
• On the other hand, having no public input into the process is of concern.

“Wider input is necessary; and public and transparency input was a goal of the revision process. A hybrid model of opening the revision process to public comment and suggestions at the same time not a full scale beta phase with field trials may be a better solution.

“WHO thanked the Council for their valuable input and contribution to the decision-making process. The TAG input is going on and the RSG has to review the topic as well. Given the current stage and pace of work, however, it is unlikely that the ICD-11 will be fulfilling the criteria for a beta version in April – either in terms of content or the software preparations. The financial situation of WHO requires more austere measures rather than a full-scale RSG meeting as planned in 11-15 April. Accordingly a decision will be made and conveyed to all stakeholders.”

 

I will update if and when ICD Revision issues an information release on its decision about the Beta Drafting platform and clarifies its intentions for the extent of public participation, or when more information becomes available.

In November, the iCAT electronic authoring platform through which the Alpha Draft was being developed was taken out of the public domain. The server for the improved version of the iCAT, which provides the platform for drafting the Beta is sitting behind a password, here: http://icat.stanford.edu/.

Access and editing rights are currently restricted to WHO, Revision Steering Group, the various ICD-11 Topic Advisory Group managing editors and members, reviewers of content and proposals and IT technicians. But it was envisaged that at the Beta stage, the drafting platform would be opened up for public access and to interested stakeholders who register for limited imput.

The Alpha and Beta drafts are “works in progress”. Proposals as they stood in the iCAT collaborative drafting platform in November, last year, are that all three terms, PVFS, (B)ME and Chronic fatigue syndrome should be classified within ICD-11 Chapter 6: Diseases of the nervous system [1].

A meeting was expected to be held in Geneva, this week, and I will post further information as it becomes available on the ICD Revision Google site.

 

References:

1] PVFS, ME, CFS: the ICD-11 Alpha Draft and iCAT Collaborative Authoring Platform (Report with screenshots from the Alpha drafting stage iCAT)

2] Key document: ICD Revision Project Plan version 2.1 9 July 2010

3] Key document: Content Model Reference Guide version January 2011

ICD-11 Training videos, transcripts and Key Revision documentation

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New ICD-11 Training videos, video transcripts and Key Revision documentation

Post #65 Shortlink: http://wp.me/pKrrB-YI

The information in this post relates only to the development of ICD-11. It does not relate to the development of the forthcoming US specific “Clinical Modification” of ICD-10, known as “ICD-10-CM”.

A WHO ICD Revision meeting was held in Ankara, Turkey, at the end of February. The ICD Revision Paediatrics Topic Advisory Group (TAG) met to discuss “Diagnostic issues on Children and Youth”.

A number of meeting documents and videos have been posted on the ICD Revision site which are general background documents to the ICD-11 development process and not specific to the work of TAG Paediatrics or the focus of the Ankara meeting.

The two training videos (“ICD-11 Content Model Training” and “iCAT Training”) are now also available on YouTube. The training videos are aimed at those currently involved with the ICD-11 Revision process as WHO staff, IT technicians and the chairs, managing editors, members and external reviewers of the ICD-11 Topic Advisory Groups but will be of general interest to those following the development of ICD-11.

Content Model

One of the main differences between ICD-10 and ICD-11 will be the amount of textual content associated with ICD categories. In ICD-10, there is no textual content, definitions or descriptions for any of the three terms, PVFS, ME, CFS, and the relationship between these terms is not specified within ICD-10.

But the ICD-11 Content Model contains 13 parameters that may be used to describe ICD entities and these parameters are discussed in the training video. So if you are not familiar with the extent of the potential for textual content describing categories within ICD-11, this video sets this out. In the References is the URL for the latest version of the “Content Model Reference Guide” document.

The 13 Parameters through which an ICD-11 category can be described are:

1. ICD Entity Title; 2. Classification Properties; 3. Textual Definition(s); 4. Terms; 5. Body Structure Description; 6. Temporal Properties; 7. Severity Properties; 8. Manifestation Properties; 9. Causal Properties; 10. Functioning Properties; 11. Specific Condition Properties; 12. Treatment Properties; 13. Diagnostic Criteria.

iCAT

The second video describes the operation of the iCAT collaborative drafting platform through which the alpha and beta drafts are being developed. The platform is currently behind a password and accessible only to ICD Revision personnel who have editing rights, but it is understood that after the Beta Drafting stage has been reached, the iCAT should be accessible to stakeholders for limited input.

The iCAT had been in the public domain up until early November for public viewing only and I have some relevant screenshots of the population of content as it stood in the iCAT, at that point, here:

PVFS, ME, CFS: the ICD-11 Alpha Draft and iCAT Collaborative Authoring Platform: http://wp.me/pKrrB-KK

ICD-11 Training videos:

1] Content Model Training Video, YouTube:

Duration: 20: 38 mins

An MS Word document of the Content Model Training Video Script can be downloaded here:

Transcript of Content Model Training Video

 

2] iCAT Training Video, YouTube:

Duration: 29:12 mins

An MS Word document of the iCAT Training Video Script can be downloaded here:

Transcript of iCAT Training Video

References:

1] Ankara Paediatrics meeting 28 February-1 March 2011
Background documents page and Agenda

2] Key document: Content Model Reference Guide version January 2011

3] Key document: ICD Revision Project Plan version 2.1 9 July 2010

4] iCAT Drafting Platform browser
(Access and editing rights currently restricted to WHO and ICD Revision, TAG members and IT personnel):

Web Protégé: Supporting the Creation of ICD-11 and iCAMP2 YouTubes

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Web Protégé: Supporting the Creation of ICD-11 and iCAMP2 YouTubes

Post #51 Shortlink: http://wp.me/pKrrB-Qv

http://iswc2010.semanticweb.org/pdf/502.pdf

Web Protégé: Supporting the Creation of ICD-11

Sean M. Falconer, Tania Tudorache, Csongor Nyulas, Natalya F. Noy, Mark A. Musen

Stanford Center for Biomedical Informatics Research, Stanford University, US

1 Introduction

The International Classification of Diseases (ICD) is a public global standard that organizes and classifes information about diseases and related health problems [4]. Health offcials use ICD in all United Nations member countries to compile basic health statistics, to monitor health-related spending, and to inform policy makers. In the United States, use of the ICD is also a requirement for all medical billing. ICD has therefore a major impact on many aspects of health care all over the world.

In 2007, the WHO initiated the 11th revision of ICD. Several ambitious goals were set for this version (details in [2]). One such goal is to allow the ICD to become a multi-purpose classification for a much larger number of usages. Previous versions of ICD were strictly classification hierarchies used for statistical purposes. To meet the new revision goals, ICD-11 will use OWL to create a rich formal representation. Another key diference between ICD-11 and previous versions is that the development process of ICD-11 will use a Web-based open process powered by collaboration and social features. That is, similar to Wikipedia, the WHO hopes that a large number of medical experts will contribute to the content of ICD-11.

Our group has been working closely with the WHO to provide the technical support for these ambitious goals. We have created a customized version of Protégé specifcally designed to support the ICD authoring process. In [2], we discuss in detail the use of Semantic Web technologies for the revision of ICD. Our demo will showcase features of the customized Protégé such as content creation and collaboration. For the remainder of this paper, we present the architecture and highlight features of the user interface…

Full document

————–

iCamp2: 27 September – 1 October 2010

http://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp2-2010   

The iCamp2 meeting, scheduled for April but postponed due to volcanic ash cloud disruption of air traffic, was held between 27 September – 1 October, in Geneva.   

iCamp2
27 September – 1 October 2010 Geneva, Switzerland WHO Headquarters   

RSG 2010 [Revision Steering Group]
30 September – 1 October 2010 Geneva, Switzerland WHO Headquarters   

The revised Agenda for the meeting can be read here in html on the ICD Revision site.   

Download here as a Word document from the ICD Revision site or open here iCamp2 Agenda September 2010 on DSM-5 and ICD-11 Watch site.   

I will post a link for the minutes, summary or note of this meeting when these are available on the ICD Revision site.

There are two ICD-11 iCamp2 on YouTube   

ICD-11 ICAMP2 Day 5 

WHOICD11′s Channel  | 21  October 2010  |  9.53 mins

iCAMP2 Day 2   

WHOICD11′s Channel  | 29 September 2010  |  7:32 mins    

 

Related information

ICD Revision iCamp2 meeting, new documents and status of the ICD-11 Alpha Draft

iCamp2 meeting and status of ICD-11 Alpha Draft

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ICD Revision iCamp2 meeting, new documents and status of the ICD-11 Alpha Draft

Post #48 Shortlink: http://wp.me/pKrrB-O9

The information in this update relates only to proposals for ICD-11.   

This information does not apply to ICD-10-CM, the forthcoming “Clinical Modification” of ICD-10, which is scheduled for implementation in October 2013 and is specific to the US.   

Post #45 is intended to clarify any confusion between ICD-10, ICD-11 and the forthcoming US specific “Clinical Modification”, ICD-10-CM.

See: US “Clinical Modification” ICD-10-CM    

iCamp2: 27 September – 1 October 2010

http://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp2-2010   

The iCamp2 meeting, scheduled for April but postponed due to volcanic ash cloud disruption of air traffic, was held between 27 September – 1 October, in Geneva.   

iCamp2
27 September – 1 October 2010 Geneva, Switzerland WHO Headquarters   

RSG 2010 [Revision Steering Group]
30 September – 1 October 2010 Geneva, Switzerland WHO Headquarters   

The revised Agenda for the meeting can be read here in html on the ICD Revision site.   

Download here as a Word document from the ICD Revision site or open here iCamp2 Agenda September 2010 on DSM-5 and ICD-11 Watch site.   

I will post a link for the minutes, summary or note of this meeting when these are available on the ICD Revision site.

Click here for a list and bios of Meeting Participants  

ICD-11 iCamp2 on YouTube   

ICD-11 ICAMP2 Day 5 

WHOICD11′s Channel  | 21  October 2010  |  9.53 mins

iCAMP2 Day 2   

WHOICD11′s Channel  | 29 September 2010  |  7:32 mins    

 

Status and format of the ICD-11 Alpha Draft   

Slipping timeline

In his iCamp2 Introductory presentation, Dr Bedirhan Üstün says there are just seven months to go before the start of the ICD-11 beta drafting phase and 43 months to the final version. Beta drafting remains scheduled to begin in May 2011, even though targets for the drafting of content are slipping and an Alpha Draft has yet to be published.

The Beta Requirements Document says, “The Beta Phase will be open to [the] general public in May 2011 to enable structured input by interested parties subject to peer-review by relevant Technical Advisory Groups” and that the time until May 2011 “will be used to develop and test the Beta Draft software and procedures and make consultations with end users around key issues and basic questions.”

iCamp2 acknowledged that a considerable amount of work needs to be done in the interim if ICD Revision is going to meet its targets.

No detailed timeline for the development of ICD-11 is available on the WHO’s main website. But in March, an ICD Revision Project Plan document, published on the ICD Revision Google site, had projected an Alpha Draft release date of May 2010, with a Beta Draft ready by May 2012. [Source: Page 7, "Project milestones and budget, and organizational overview".]

A press launch for the Alpha Draft had been tabled for discussion on the Agenda for the April iCamp2 meeting. In the event, the April meeting was postponed, but ICD Revision has issued no public explanation for why the anticipated Alpha Draft failed to be released in April/May, nor has the Steering Group issued a revised ETA.

From the ICD Revision Project Plan:

The Alpha draft will be produced in a traditional print and electronic format. The Alpha Draft will also include a Volume 2 containing the traditional sections and including a section about the new features of ICD-11 in line with the style guide. An index for print will be available in format of sample pages. A fully searchable electronic index using some of the ontological features will demonstrate the power of the new ICD.

According to sources, in July, a print version of the Alpha Draft was expected to be made available around the time that the rescheduled iCamp2 meeting took place in September. Requests for clarification of the status and accessibility of an alpha draft have been left on ICD Revision Facebook site by several members of the public. When a response was eventually forthcoming, in August, it was confirmed that a “draft print version will be available in September 2010″.

iCamp2 is over now, but it remains unclear whether a print version has been produced, whether it is intended for internal use only or is going to be made available for public scrutiny, and if so, when, and in what format(s). ICD Revision has been asked to clarify.

This slide from a DSPIM presentation says the Alpha Draft was scheduled for completion by 27 September:

Source: Slide 9, PDF presentation slides: ICD-11 Revision: where are we now? Ontology driven tools and web platform. JM Rodrigues et al, DSPIM, University of Saint Etienne, WHO Collaborating Centre for International Classifications in French Language, Paris.

 

The WHO is promoting the development of ICD-11 as a transparent, collaborative and inclusive process

The Revision Steering Group (RSG) has launched a number of public interfaces – the ICD-11 Revision site (meeting agendas, minutes, documents and presentations), a YouTube channel, a blog (not updated since October 2009), a Facebook site, Twitter and an iCAT users Google Group, open to any stakeholders who register for access.  The iCAT Web 2.0 drafting platform is also viewable by the public and the production server can be accessed here: http://icat.stanford.edu/.

But little consideration appears to have been given to who should take responsibility for responding to questions from stakeholders or fielding queries left on the ICD Revision Facebook site, which rarely receive a reasonably prompt response, or any response, at all.

WHO Secretariat do not always acknowledge or respond to enquiries. A request for clarifications from a Topic Advisory Group (TAG) Chair, whilst acknowledged, has received no response after three months. The 5th meeting of the International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders (currently ICD-10 Chapter V) was held on 28 – 29 September 2009. A year later, a Summary Report is still pending publication and no meeting summaries for TAG Mental Health have been published on the WHO website since the 4th Meeting 1 – 2 December 2008.

The WHO needs to decide whether, in launching public interfaces and using “social networking” for input and feedback from stakeholders it genuinely seeks to provide platforms for meaningful interaction with the public or whether these are tokenistic nods at “transparency”.

Content posted by ICD Revision admin on its Facebook Wall often lacks meaning and substance. What stakeholders really need to know is whether any form of alpha draft is going to be publicly released before the Beta phase – not photos of happy iCampers playing bassoons at musical soirées and iCamp bonding sessions.

I will update if and when any information is released on the status and public availability of an alpha draft, and what format(s) it will be available in.

Proposals

Since 2007, it has been possible for stakeholders in the development of ICD to submit proposals and comments, supported by citations, via the ICD Update and Revision Platform Intranet. It was understood, last September, that for some Topic Advisory Groups (notably Chapters 5 and 6) a proposal form for ICD-11 was being prepared for use by stakeholders.   

Information about the availability of proposal forms for the various Topic Advisory Groups, up to what stage in the development process timeline these might be used and which stakeholders might be permitted to make use of any proposal forms already being issued or in preparation would also be welcomed from the Revision Steering Group or TAG managing editors.

Slipping targets

According to the iCamp2 PowerPoint presentation, Frequent Criticisms and this iCamp2 YouTube, targets for the population of content for the Alpha Draft have not been reached.   

Less that 80% of Terminology Definitions have been uploaded to the iCAT and less than the 20% target for full Content Model completion for the many thousands of diseases and disorders classified within ICD has been met. [The Content Model identifies the basic properties needed to define any ICD concept (unit, entity or category) through the use of multiple parameters.] Not all parameters of the Content Model are implemented yet. Not all Topic Advisory Groups are at a similar developmental stage; Beta Plans are behind schedule.   

The Revision Steering Group identifies barriers to keeping this technically very ambitious project on track:  lack of finances; the sheer amount of time required for the drafting of definitions and population of textual content according to the complex ICD-11 Content Model; recruiting external experts for reviewing proposals and generating content; familiarising TAG workgroup members with the functionality of the iCAT, the collaborative authoring platform through which ICD-11 is being drafted, and with informatics; entering data into the iCAT; the paucity of face-to-face meetings for TAG managing editors and workgroup members who are scattered across the globe and undertaking these roles in addition to professional commitments; difficulties facilitating interaction between the various Topic Advisory Groups where diseases overlap with other chapters.

A number of new workgroups have recently been created (Paediatrics, Dentistry, E.N.T, Traditional Medicine and Communicable/Tropical Diseases).

Under “Overall Directions” in the Beta Requirements Document, it says:   

The knowledge representation space is too large to be curated by a small number of experts (e.g. 20,000 ICD Categories, 15 parameters of CM [Content Model], each may have 1-20 entries – on average a relational database matrix with 300,000 entries). 

[...]    

Scaling up the process from the alpha phase to beta should be carefully planned and modelled. It is estimated that the alpha phase participants will be at the magnitude of 500-1000 persons. In beta phase it is expected to have 10-100 fold increase.   

If the Revision Steering Group is already struggling to maintain motivation and interaction between the various Topic Advisory Groups, then management of the project once the beta phase is reached and the process opened up to stakeholders is going to present the Steering Group and TAG workgroup managing editors with considerable challenges.   

The original dissemination date for ICD-11 had been 2012, with the timelines for the revision of ICD-10 and DSM-IV running more or less in parallel. The dissemination date for ICD-11 was later extended to 2014 and the publication date of the next edition of the DSM, DSM-5, extended to May 2013.

(John Gever, Senior Editor, MedPage Today, reported on 5 October that Testing of new diagnostic criteria proposed for DSM-5, the revision of the psychiatric profession’s manual for patient assessment, is finally underway, more than two months behind schedule.)

The development of ICD-11 is a hugely complex and technically ambitious undertaking; all three volumes will be electronically published, integrable and intended to be integrable with some other health classification publications; the scope of ICD-11 is far greater than that of the previous edition.

It may be that come May 2011, we might anticipate some scaling back of plans and/or possibly a shift in the release of the Beta Draft from May 2012 to 2013+, in response to the recognition that the WHO may have significantly overestimated its capacity for securing the funding and resources to complete the technical work on this project by 2012, if implementation of the final version is to take place in 2014.

The iCamp YouTube commentaries have an air of brittle optimism about them.

Coming up

In a forthcoming post, in lieu of an Alpha Draft, I shall be reporting on what can currently be seen in the ICD-11 iCAT drafting platform and associated Revision documents in relation to the three ICD-10 categories: “Postviral fatigue syndrome”, “Chronic fatigue syndrome” and “(Benign) myalgic encephalomyelitis” and why I have asked the Chair of the Topic Advisory Group for Neurology for a clarification.

 

iCamp2 meeting documents  and presentations

A number of new and existing ICD revision related documents have been published on the ICD-11 Revision Google site in association with the iCamp2 and RSG September meetings. Not all the documents listed have been uploaded to the ICD Revision site and several links are returning “File not found”.

Face-to-Face Meetings‎ > ‎iCamp2: 27 September – 1 October 2010‎
http://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp2-2010/documents   

iCamp2 Agenda  [27 September - 1 October 2010] 

Workflow  [PDF]

iCAT Progress Table  [Not currently available]
Alpha Draft Print Sample  [Not currently available]
iCAT Tool Documents  [Not currently available]

• User Manual  [Content Model User Guide, 53 pp Word doc]  Key ICD-11 document
• Issues and Feature Lists  [Not currently available]

• Tasks Completed  [Not currently available]
• Tasks In Progress/Pending  [iCAT Release Notes on iCAT Google Group platform]

Narrative Workflow Diagram  [Not currently available]

Standard Operating Procedures  [Not currently available]

Beta Requirements Document   [3 pp Word doc]

Workplans:   

• TAG HIM  [Not currently available]
• RSG  [Not currently available]
• TAGs  [Not currently available]

3 Component Content Model Description   [File not found] 

• Linearization Component  [File not found]
• Foundation Component  [File not found]
• Ontology Component  [1 slide pptx + notes; PowerPoint slides require MS PP 2007 pptx reader]

Evaluation Strategy for Alpha Draft 

• Questions for Reviewers  [Not currently available]
• Quality Assurance  [Not currently available]

Dagger-Asterisk Convention Abolition  [Not currently available]

DIFF File–Changes from ICD-10  [MS Excel doc. Retrieved 29.09.10; Not available on 01.10.10]

Field “A Type“ specifies: new; unchanged; decision to be made; retired; real retired

[Note: ICD11 Alpha Codes may be temporary sorting codes; "FXC" against "G93.3" does not relate to the F Codes in ICD Chapter 5 (V); note also that Gj92 is an ICD-11 "Sorting label" not an ICD code.]

Extract Spreadsheet: 

 

Frequent Criticisms   [11 slide pptx; PowerPoint slides require MS PP 2007 pptx reader]   

Signs and Symptoms   [4 pp Word doc; Discussion document: Considerations for handling categories and concepts currently found in chapter 18 of ICD-10, “SYMPTOMS, SIGNS AND ABNORMAL CLINICAL AND
LABORATORY FINDINGS NOT ELSEWHERE CLASSIFIED”, (R-codes), authors: Aymé, Chalmers, Chute, Jakob.] Or open here: Discussion: Signs and Symptoms (Chapter 18)

Multisystem Chapter   [12 pp Word doc; Discussion document: Multisystem Chapter, authors: Aymé, Chalmers, Chute, Jakob.] Or open here: Discussion: Multisystem Chapter

“ICD has traditionally grouped diseases by aetiology and by affected organ system.  For ICD­11 the creation of a new chapter for multisystem disorders has been proposed.  The following text sets out the rationale for and the possible scope of a multisystem disorders chapter.”

Contains Literature search reference at 119 to the Maes and Twisk paper, Treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a multisystem disease, should target the pathophysiological aberrations (inflammatory and oxidative and nitrosative stress pathways), not the psychosocial “barriers” for a new equilibrium. 2010: Ireland. p. 148-9. 

Contains Literature search reference at 118 to published response to Maes and Twisk paper by Luyten, P. and B. Van Houdenhove, Treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), a multisystem disease, should target the pathophysiological aberrations (inflammatory and oxidative and nitrosative stress pathways), not the psychosocial “barriers” for a new equilibrium – Response to Maes and Twisk. 2010, ELSEVIER IRELAND LTD, ELSEVIER HOUSE, BROOKVALE PLAZA, EAST PARK SHANNON, CO, CLARE, 00000, IRELAND. p. 147-147.

Presentations  [PowerPoint slides require the MS PP 2007 pptx reader unless identified as ppt]   

Introduction (USTUN)  [14 slides]

Volume 1 (JAKOB)  [26 slides]

Volume 2 (JAKOB)  [11 slides]

Volume 3 (CELIK)  [6 slides + notes]

iCAT (TUDORACHE)  [26 slides PDF; iCAT Progress Update, Stanford Center for Biomedical Informatics Research]

iCAT & TAG Statistics (COTTLER)  [10 slides; New, Retired and Unchanged ICD Concepts (statistics)]

Rare Diseases (RATH)  [19 slides; Rare Diseases TAG feedback on ICD revision]

Dermatology (CHALMERS/WEICHENTHAL)  [ppt; 15 slides]

Ophthalmology (COLENBRANDER/KASHII)  [ppt; 3 slides]

Internal Medicine (SUGANO)  [10 slides]

Paediatrics (LINZER)  [ppt; 4 slides; Newly created TAG]

Musculoskeletal (SUNDBERG)  [ppt; 7 slides]

External Causes and Injuries  (HARRISON)  [ppt; 11 slides]

Maternal, Neonatal and Urogenital  (CHOU)  [ppt; File will not open at 01.10.10]

Socio-Technical Systems (STOREY)  [pptx; 31 slides]

 

TAG Neoplasms  [ppt; 105 slides]

Functioning TAG  [ppt; 21 slides]

TAG Morbidity  [ppt; 5 slides] 

Additional documents  [All PDFs]

Ophthalmology TAG DRAFT
Pre001.2 Dermatology TAG
Rare Diseases Chapter 3 Haematological diseases DRAFT 2
Rare Diseases Chapter 3 Immunological Diseases DRAFT
Rare Diseases Chapter 4 Endocrine Diseases DRAFT
Rare Diseases Chapter 4 Metabolic Diseases DRAFT
Rare Diseases Chapter 4 Nutritional Diseases DRAFT
Rare Diseases Chapter 6 Neurological Diseases DRAFT

 

References:

PVFS, ME, CFS: the ICD-11 Alpha Draft and iCAT Collaborative Authoring Platform, 7 June 2010, Post # 46: http://wp.me/pKrrB-KK

[1] ICD-11 Revision Project Plan – Draft 2.0 (v March 10):
Describes the ICD revision process as an overall project plan in terms of goals, key streams of work, activities, products, and key participants: ICD Revision Project Plan
http://www.who.int/classifications/icd/ICDRevisionProjectPlan_March2010.pdf

[2] User Manual [Content Model User Guide, 53 pp Word doc]  Key ICD-11 document
Identifies the basic properties needed to define any ICD concept (unit, entity or category) through the use of multiple parameters. Open here on DSM-5 and ICD-11 Watch: User Manual 20.09.10

[3] iCAT production server:
http://sites.google.com/site/icd11revision/home/icat
iCAT production server: http://icat.stanford.edu/

[4] iCAT Glossary
http://apps.who.int/classifications/apps/icd/icatfiles/iCAT_Glossary.html

New WHO YouTube videos: ICD-11 and ICTM

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New WHO YouTube videos: ICD-11 and ICTM

Post #44 Shortlink: http://wp.me/pKrrB-IP

ICD-11 Alpha Draft

It was anticipated that an Alpha Draft for ICD-11 would be ready by 10 May. ICD Revision Steering Group has issued no news release around a launch but I will update as soon as information becomes available.

My previous report “ICD-11 Alpha Draft scheduled to launch between 10 and 17 May” can be read here on DSM-5 and ICD-11 Watch.

 

ICD on YouTube

Two new videos have been added to the WHOICD11 YouTube channel.

WHOICD11 Channel YouTube:

http://www.youtube.com/user/WHOICD11

ICD-11 Alpha Draft 11 May 2010 [3.46 mins]

Brief introduction to the development of ICD-11.

ICD-11 ICTM March 2010 [10.40 mins]

International Classification of Traditional Medicine consulation

This three day WHO consultation on traditional medicine was held in Geneva, in March. The meeting discussed a proposal for an International Classification of Traditional Medicine (ICTM) to parallel the ICD.

The ICTM is projected for 2014 as a new member of the WHO Family of International Classifications (WHO FIC). The vision for ICTM is to produce an international, standardised classification system of terminology, definitions, safety and treatment properties for traditional, complementary and alternative medicine according to a common content model.

All 13 ICD YouTube videos are collated on this page on this DSM-5 and ICD-11 Watch site sub page:

ICD-11 YouTubes: http://wp.me/PKrrB-eV

ICD-11 Alpha Draft scheduled to launch between 10 and 17 May

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ICD-11 Alpha Draft scheduled to launch between 10 and 17 May

Post #42 Shortlink: http://wp.me/pKrrB-GT

NOTE: The post below is superceded by Post # 46:

PVFS, ME, CFS: the ICD-11 Alpha Draft and iCAT Collaborative Authoring Platform

Shortlink Post #46: http://wp.me/pKrrB-KK

Note that until the ICD-11 Alpha Draft is released, it cannot be determined how far the various Topic Advisory Groups have progressed with proposals for revising ICD-10 classifications or with populating definitions and other content according to the ICD Content Model. Proposals for revision of classifications and textual content may differ from the examples on the Demo and Training iCAT platform as it appeared on the date this posting was compiled (accessed 06.05.10).

Also note that information in this report applies to the revision of ICD-10 towards ICD-11. Countries using a “Clinical Modification” of ICD, for example, Canada (ICD-10-CA), the USA (implementing ICD-10-CM, in October 2013), Australia (ICD-10 AM) and Germany (ICD-10-GM) should refer to their specific national modification of ICD.

Information on the launch of ICD-11 Alpha Draft

The revision of ICD-10 is overseen by a Revision Steering Group (RSG) and being undertaken by a number of Topic Advisory Groups (TAGs) via a collaborative authoring platform called the iCAT (Initial ICD-11 Collaborative Authoring Tool) using wiki-like software.

Topic Advisory Groups have responsibility for revision of the various chapters, formulating definitions and diagnostic criteria for the relevant categories and suggesting changes to the classification structure.

Since 2007, anyone has been able to submit proposals to the various Topic Advisory Groups for changes or additions to ICD-10 via the ICD Update and Revision Platform. This is not the iCAT, but an extranet where any registered user has been able to submit proposals backed up with citations.

You can register for access, here:
https://extranet.who.int/icdrevision/nr/login.aspx?ReturnUrl=%2ficdrevision%2fdefault.aspx

The WHO has scheduled a press launch of the ICD-11 Alpha Draft and the iCAT electronic authoring platform between 10 – 17 May.

You can see how the iCAT operates in this series of ICD Revision YouTubes: http://wp.me/PKrrB-eV

Once launched, the iCAT will be viewable to anyone who registers for access. But there will be varying levels of editing authority which will initially be restricted to WHO Classification Experts, WHO Secretariat, ICD-11 Revision Steering Group, the Managing Editors and members of Topic Advisory Groups and working groups and the reviewers and expert advisers recruited by the TAG Managing Editors to assist with the reviewing of content.

There is also an iCAT User Group for which anyone can register for membership.

It is anticipated that the public will not be able to interact with the iCAT, for example, to add comment on proposals, until after the Beta Draft has been released for public review and consultation in 2011. But following the launch of the Alpha Draft, it should be possible, to monitor the progress and population of content.

I have requested clarification of whether the names of external reviewers recruited by TAG Managers will be identified within the iCAT and whether the public will be able to track reviewers’ input and comments as content proposals are progressed through the Alpha Drafting Workflow.

ICD Revision maintains a Google website here: https://sites.google.com/site/icd11revision/home

The site publishes agendas and minutes for ICD Revision meetings and also PowerPoint presentations and revision documents. Some of these documents are works in progress and revised versions are uploaded from time to time on this page and on the Face-to Face Meetings pages:
https://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp/documents
https://sites.google.com/site/icd11revision/home/face-to-face-meetings

There are links for several key documents in Footnotes [1].

The WHO publishes only ICD-10 Volume 1: The Tabular List and ICD-10 Volume 2: The Instruction Manual, online. Summaries of WHO meetings in 2007 and presentations in 2008, proposed that all three volumes of ICD-11 should be freely accessible via the internet. When ICD-11 is disseminated (2014+), all volumes, including Volume 3: The Alphabetical Index, will be electronically published and accessible online.

In ICD-10 Volume 1: The Tabular List, “Postviral fatigue syndrome” is classified in Chapter VI (6) Diseases of the nervous system under G93 Other disorders of brain, coded G93.3.

“Benign myalgic encephalomyeltis” is also coded at G93.3.

http://apps.who.int/classifications/apps/icd/icd10online/?gg90.htm+g933
http://dxrevisionwatch.wordpress.com/icd-11-me-cfs/

In ICD-10, “Chronic fatigue syndrome” is listed in Volume 3: The Alphabetical Index, only, where it is indexed to G93.3.

To date, ICD Revision has been silent around the inclusion (or not) of “Chronic fatigue syndrome” in Volume 1: The Tabular List, in ICD-11.

Nor has ICD Revision published any intention that it proposes to revise the existing Index code for “Chronic fatigue syndrome” for ICD-11 or that “Chronic fatigue syndrome” should be placed in a chapter other than Chapter VI (6), to which it is currently indexed, if it were the case that ICD Revision is considering the inclusion of “Chronic fatigue syndrome” in Volume 1: The Tabular List.

My websites and reports make no assumptions about what proposals might be made by any of the Topic Advisory Groups for the potential inclusion of “Chronic fatigue syndrome” in Volume 1, in ICD-11. But since all three volumes of ICD-11 will be integrable, it is reasonable to anticipate that “Chronic fatigue syndrome” might be included in Volume 1 in this forthcoming edition. (See Footnote [2])

ICD-11 will drop the use of Roman numerals for chapter numbering, so we shall be monitoring, for example, the development of Chapter 5: Mental and behavioural disorders (TAGMH) and Chapter 6: Diseases of the nervous system (TAG Neurology).

The “Start-up List”

The starting point for the Alpha Draft is the “Start-Up List” of categories that has been drafted by WHO to initiate the editing process. This list includes current ICD-10 content, input from ICD national modifications, primary care versions and speciality adaptations, textual definitions imported from affiliate classification publications, proposals received to revise the existing ICD via the Update and Revision Platform and other channels.

During alpha drafting, detailed structured definitions will be added to these ICD categories according to a common template – the “Content Model”.

The “Content Model”

According to ICD Revision, the most important difference between ICD-10 and ICD-11 will be the “Content Model”.

The Content Model is designed to support detailed descriptions of the clinical characteristics of each category and clear relationships to other terminologies and classifications. It identifies the basic characteristics needed to define any ICD category through use of multiple parameters (eg Body Systems, Body Parts, Signs and Symptoms, Diagnostic Findings, Causal Agents, Mechanisms, Temporal Patterns, Severity, Functional Impact, Treatment interventions, Diagnostic Rules).

So there is the potential for considerably more content to be included for diseases, disorders and syndromes for any given entity in ICD-11 than currently appears in ICD-10.

There are examples of several disease entities populated in accordance with the Content Model on the ICD Revision website. The most recent version of the Content Model can be downloaded from this page:
https://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp2-2010/documents

or open the file here:

Word Document: Doc2b
Content Model Specifications and User Guide
http://tinyurl.com/ICD11ContentModelApril10

See also this paper:

“A Content Model for the ICD-11 Revision”
http://bmir.stanford.edu/file_asset/index.php/1522/BMIR-2010-1405.pdf

How advanced will the Alpha Draft be when it is launched?

According to this late 2009 document: http://tinyurl.com/SummaryiCAMPSept09

It was projected that

“Volume I of ICD-11 Alpha Draft will be published with full Morbidity Linearization ( like ICD-10 fourth edition ) including definitions for at least 80% of the categories. 20% of the entries should have content model parameters completed.

“Volume II of ICD-11 Alpha Draft will be published as a prototype with guidelines and rules to the use of the classification for mortality and morbidity use cases.

“Volume III Index: will be presented both a Digital Search Tool and possible paper version”

The most recent iCamp2 (2010) and Revision Steering Group Meetings took place on 19-23 April, in Geneva. The agenda is available here: http://tinyurl.com/AgendaiCAMP2April10

Revising ICD via the iCAT platform towards a publication comprising three integrable volumes capable of continuous revision in response to new scientific evidence is an ambitious and technically complex operation. ICD-11 is being authored collaboratively by Topic Advisory Group Managers, members and reviewers who are scattered all over the world and who are undertaking these roles in addition to their professional commitments. At present, 136 scientists from 36 countries and all WHO regions are contributing to the work.

The Minutes of the April RSG meeting are not yet available and it’s not clear how on target the Alpha Draft remains or whether the goals for May 2010 have had to be revised.

To view the iCAT Demo and training platform:

Go to the ICD-11 Revision site:

https://sites.google.com/site/icd11revision/home/

then to this page:

iCAT – Initial ICD-11 Collaborative Authoring Tool
https://sites.google.com/site/icd11revision/home/icat

and click on this link:

The demo and training iCAT platform: http://icatdemo.stanford.edu/

this will link to the server hosting the iCAT Demo and Training Platform where you can see how the iCAT will function. (Give it a little time to load.)

Once you are into the iCAT demo, you can poke about:

Click on the “ICD Content” Tab (second Tab on left)

Open the + next to ICD Categories, if the drop down list is not already displaying

Open the + next to 06 VI Diseases of the nervous system

Open the + next to G90-G99 Other disorders of the nervous system

Open the + next to G93 Other disorders of brain

Click on G93.3 Postviral fatigue syndrome

On the Right of your screen:

Click on the “Definition Tab” if it is not already selected

You should see the following:

ICD Code* G93.3

ICD Title Postviral fatigue syndrome

Definition (Text currently unpopulated)

*For a Glossary of Terms click on the ? next to the Field Titles which link to a general page setting out the terms and template for content population within ICD-11.

(URL for this Glossary page is: http://apps.who.int/classifications/apps/icd/icatfiles/iCAT_Glossary.html#definition  )

There are no Definitions populated in this demo for the entry for “Postviral fatigue syndrome”.

Note that until the actual ICD-11 Alpha Draft is released, it cannot be determined how far the various Topic Advisory Groups have progressed with populating content according to the ICD Content Model for the categories of interest to us.

Some “External definitions” have been entered into the demo.

Note these have been imported from other classification systems, either as part of the initial “Start-up List” used to kick start the revision process, or are being used as examples of a populated field.

Again, we need to wait until the draft comes out to see how many fields have been populated so far, their textual content, and the editing status of their content.

External definitions:

Three definitions are currently displaying. (These three definitions are collated on this site along with their sources):
http://www.fpnotebook.com/Rheum/Sx/ChrncFtgSyndrm.htm

iCAT field: External definitions:

A syndrome of unknown etiology. Chronic fatigue syndrome
(CFS) is a clinical diagnosis characterized by an unexplained
persistent or relapsing chronic fatigue that is of at least six
months duration, is not the result of ongoing exertion, is not
substantially alleviated by rest, and results in substantial reduction
of previous levels of occupational, educational, social
or personal activities. Common concurrent symptoms of at least
six months duration include impairment of memory or concentration,
diffuse pain, sore throat, tender lymph nodes,headaches of a new
type, pattern, or severity, and nonrestorative sleep.
The etiology of CFS may be viral or immunologic. Neurasthenia
and fibromyalgia may represent related disorders. Also known as
myalgic encephalomyeltis.

Ontology ID UMLS/NC12007_05
E

distinctive syndrome characterized by chronic fatigue, mild fever,
lymphadenopathy, headache, myalgia, arthralgia, depression, and
memory loss: candidate eitiological agents include Epstein-Barr and
other herpesviruses.

Ontology ID UMLS/CSP2006

A syndrome characterized by persistent or recurrent fatigue,
diffuse musculoskeletal pain, sleep disturbances, and subjective
cognitive impairment of 6 months duration or longer. Symptoms
are not caused by ongoing exertion; are not relieved by rest; and
result in a substantial reduction of previous levels of occupational,
educational, social or personal activities. Minor alterations of
immune, neuroendocrine, and automatic function may be
associated with this syndrome. There is also considerable
overlap between this condition and FIBROMYALGIA. (From Semin
Neurol 1998;18(2):237-42: Ann Intern Med 1994 Dec 15;121(12):
953-9)

Ontology ID UMLS/MSH2008_2
008_02_04

Very few Tabs have been populated in this demo version of the iCAT:

Terms

Synomyms: Not yet populated

Inclusions: Benign myalgic encephalomyeltis

Exclusions: Not yet populated

Clinical Description; Body System; Body Part not yet populated

Entire brain (body structure) Term ID 258335003
Brain structure (body structure) Term ID 12738006

Diagnostic Criteria; Causal Mechanism and Risk Factors not yet populated

Causal Mechanism Virus (organism) Term ID 49872002

Risk Factors; Genomic Linkages; Etiology Type; Causal Mechanism; Functional Impact; SNOMED References not yet populated etc.

Go back to the ICD Content Tab list and open the page for Chapter 5 (V) Mental and behavioural disorders.

Then open the + for F40-F48 Neurotic, stress-related and somatoform disorders

Then open “F45 Somatoform disorders”

where the existing categories in ICD-10 Chapter V: Somatoform disorders are listed.

Note they are listed as they currently appear in ICD-10, as set out in this Comparison Table and are not congruent with any current proposals by the DSM-5 Work Group for Somatic Symptoms Disorders for the proposed major restructuring of the “Somatoform Disorders” categories, as published in the DSM-5 draft
proposals for diagostic criteria, on 10 February:

Comparison Table: http://dxrevisionwatch.files.wordpress.com/2010/01/dsm-icd-equiv3.png

“Harmonization” and integration of ICD-11 with DSM-5

There is already a degree of correspondence between DSM-IV and Chapter V of ICD-10. For the next editions, the APA and the WHO have committed as far as  possible: “To facilitate the achievement of the highest possible extent of uniformity and harmonization between ICD-11 mental and behavioural disorders and DSM-V disorders and their diagnostic criteria” with the objective that “The WHO and APA should make all attempts to ensure that in their core versions, the category names, glossary descriptions and criteria are identical for ICD and DSM.”

It should be evident from the iCAT demo that there is the potential for considerably more content to be included in ICD-11 than there is in ICD-10 and that the progress of the population of content for the categories of interest to us is going to need continuous monitoring as the Topic Advisory Groups and their reviewers work towards the Beta Draft.

I shall update as more information on the launch of the alpha and iCAT becomes available over the next couple of weeks.

————————-

Footnotes:

[1] Key documents:

Content Model Specifications and User Guide (v April 10)
Identifies the basic properties needed to define any ICD concept (unit, entity or category) through the use of multiple parameters.
http://tinyurl.com/ICD11ContentModelApril10

ICD-11 Revision Project Plan – Draft 2.0 (v March 10)
Describes the ICD revision process as an overall project plan in terms of goals, key streams of work, activities, products, and key participants.
http://www.who.int/classifications/icd/ICDRevisionProjectPlan_March2010.pdf

Alpha Drafting Workflow (v 06.10.09)
Sets out lines of responsibility between the various contributors for the alpha drafting phase.
http://dxrevisionwatch.files.wordpress.com/2010/01/alpha-drafting-workflow-27-01-10.doc

Further documents eg Style Guide, ICD-11 Conventions:
https://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp/documents

[2] The Introduction to ICD-10 Volume 3: The Alphabetical Index lists several possible relationships between a term included in the Alphabetical Index and a term included in the Tabular List to which it is indexed:

“The terms included in the category of the Tabular List are not exhaustive; they serve as examples of the content of the category or as indicators of its extent and limits. The Index, on the other hand, is intended to include most of the diagnostic terms currently in use. Nevertheless, reference should always be made back to the Tabular List and its notes, as well as the guidelines provided in Volume 2, to ensure that the code given by the Index fits with the information provided by a particular record.

“Because of its exhaustive nature, the Index inevitably includes many imprecise and undesirable terms. Since these terms are still occasionally encountered on medical records, coders need an indication of their assignment in the classification, even if this is to a rubric for residual or ill-defined conditions. The presence of a term in this volume, therefore, should not be taken as implying approval of its usage.”

and, according to a February 2009 response from WHO HQ Classifications, Terminology and Standards Team, terms that are listed in the Index may be:

a synonym to the label (title) of a category of ICD;
a sub-entity to the disease in the title of a category;
or a “best coding guess”.

In indexing “Chronic fatigue syndrome” to G93.3, ICD-10 does not specify how it views the term in relation to “Postviral fatigue syndrome” or in relation to “Benign myalgic encephalomyelitis”. Nor does ICD-10 specify how it views the relationship between “Postviral fatigue syndrome” and “Benign  myalgic encephalomyelitis”.

ICD on YouTube: ICD-11 ICF ICD ICAMP January 2010

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ICD on YouTube: ICD-11 ICF ICD ICAMP Face to Face meeting January 2010

Post #14 Shortlink Post: http://wp.me/pKrrB-x7

IWHOCD11 Channel   [6.59 mins]

ICD-11 ICF ICD ICAMP January 2010.mp4

Related information:

WHO iCAMP ICD-ICF Linkages Meeting, Geneva, 28–29 January 2010: New documents on ICD-11 Revision site