PVFS, ME, CFS: the ICD-11 Alpha Draft and iCAT Collaborative Authoring Platform

June 7, 2010 by

PVFS, ME, CFS: the ICD-11 Alpha Draft and iCAT Collaborative Authoring Platform

Post #46 Shortlink: http://wp.me/pKrrB-KK

The information in this report relates solely to proposals for ICD-11. It does not apply to ICD-10-CM, the forthcoming US “Clinical Modification” of ICD-10. For information on ICD-10-CM see Post #45.

Update @ 6 February 2011

Note that in early November, the iCAT was taken out of the public domain and you will not now be able to view the screenshots below, in situ.

Update @ 30 July 2010

The ICD Revision iCamp2 meeting which was scheduled for April and for which a copy of the Agenda is still available was evidently postponed. ICD-11 Revision Google site gives the revised meeting date as:

27 September – 1 October 2010

According to sources, a print version of the ICD-11 Alpha Draft is now expected to made available around the time that iCamp2 takes place. No Agenda is available yet for this September meeting. The ICD-11 Beta Draft is timetabled for May 2011.

 

Whither the ICD-11 Alpha Draft?

According to documents published by the ICD Revision Steering Group (RSG) and the Agenda for the iCAMP2 and Revision Steering Group meeting on 19-23 April 2010, it was projected that an alpha draft for ICD-11 would be ready by 10 May 2010 [Key document 1a].

The RSG meeting Agenda proposed that the alpha draft should be presented to the World Health Assembly (WHA) between 17-25 May. A proposal for a press launch was also tabled for discussion.

It is understood that the ICD-11 alpha draft is being created for internal users, was not expected to be complete by May 2010, but released as a “work in progress” towards the beta stage. The Beta Draft for ICD-11, scheduled for May 2011, will be subjected to systematic field trials. It remains unclear at what point in the timeline the Beta would be made available for public comment.

As the Minutes of the April RSG meeting are not yet available, it remains unclear how on target the alpha draft is or whether the goals for 2010 have had to be revised. (See Page 7, ICD-11 Revision Project Plan – Draft 2.0 for Project milestones and budget, and organizational overview.)

When the RSG does release information on the status of the alpha draft and the operational status of the iCAT, I will post an update.

In the meantime, I have asked for information about the availability of Topic Advisory Group proposal forms for stakeholder input, up to what stage in the development process timeline these might be used, and which stakeholders are going to be permitted to make use of proposal forms.

 

iCAT production server

In the posting ICD-11 Alpha Draft scheduled to launch between 10 and 17 May, 6 May, I reported that it is already possible to view a “Demo and Training iCAT Platform” and also access the iCAT production server.

I cautioned that until an official ICD-11 Alpha Draft is released, it cannot be determined how far the various Topic Advisory Groups have progressed with revising classifications and populating textual content according to a common “Content Model” for the ICD Chapters and categories of interest to us [Key document 1b].

I noted that the Demo and Training iCAT Platform, at that point, was sparsely populated for content and that the classifications and codings listed within the various chapters appeared to have been imported from ICD-10, with little discernable change – presumably as the starting point for the drafting process.

A revised Demo and Training iCAT Platform is now accessible, the content of which is also viewable on the iCAT production server and it is to these proposed revisions that I want to draw your attention.

Note that anyone can view the Demo and Training iCAT Platform and iCAT production server but only WHO, ICD Revision and IT personnel and the Managers and members of the various Topic Advisory Groups (TAGS will have editorial access. External reviewers recruited by TAG Managers will also use the iCAT to upload reviews and comment on proposals and content.

I have compiled a series of screenshots and very brief notes on what is viewable at the moment for the chapters and categories of interest to us.

Note: Screenshots are taken from the Demo and Training iCAT Platform and iCAT production server as they stood at 24 May 2010.  Alpha drafting is an ongoing process and what currently appears may be subject to revision, refinement and additions. Not all the classification and content work currently being undertaken may have been entered into the iCAT.

Note also that when viewing the iCAT in your browser, the left hand side of the screen displays the ICD Categories listings with the category Definition, Term, Clinical Description, Diagnostic Criteria etc displaying on the right of the screen. Because this view is too wide to display on my website template, the screenshots have had to be split in two. On your screen, the iCAT would look like this:

 

All screenshots as they stood at 24 May 2010.

A wiki-like Collaborative Authoring Tool (known as the iCAT) is being used for the initial authoring of the alpha draft.

The iCAT production server and Demo and Training iCAT Platform can be accessed here:

https://sites.google.com/site/icd11revision/home/icat

iCAT production server at: http://icat.stanford.edu/

Demo and Training iCAT Platform at: http://icatdemo.stanford.edu/

Load either (they may take a minute or more to load and appear less inclined to hang in Firefox).

One loaded, you will be presented with an Entry Page – this is the My ICD Tab

Welcome to iCAT – the Initial ICD 11 Collaborative Authoring Tool!
 

Select the ICD Content Tab and ICD Categories by chapter will populate down the left side of the screen.

Scroll down and open up the + next to 06 VI Diseases of the nervous system

ICD Categories:

 

Scroll down and note that ICD-10 codings between G83.9 and G99.8 are being reorganised and have been assigned the labels GA thru GN (some of which, like GN, are parent categories with child and grandchildren categories).

Open up the + next to GN Other disorders of the nervous system

which is a parent to category Gj92 Chronic fatigue syndrome

(Note: Gj92 is known as a “Sorting label”. A Sorting label is a string that can be used to sort the children of a category. This is not the ICD code.)

Note that Postviral fatigue syndrome and Benign myalgic encephalomyelitis are not currently accounted for in the ICD Categories List as children of the parent category GN Other disorders of the nervous system. Only Chronic fatigue syndrome is listed and assigned the Sorting Label “Gj92”. [See Glossary: Inclusions]

 

 

 
Click on the double speech bubble icon next to Gj92 Chronic fatigue syndrome which will display 1 Category Discussion Note (Click Expand to display the full note. Discussion Notes can also be accessed via the Category Notes and Discussions Tab, from which the screenshot below, orginates).

Discussion Note for Gj92 Chronic fatigue syndrome:

This Discussion Note records a Change in hierarchy for class: G93.3 Postviral fatigue syndrome because its parent category (G93 Other disorders of brain) is removed.

Note that the removal of the parent G93 Other disorders of brain will affect other categories also classified under G93 in ICD-10, not just G93.3. Open up the double speech bubble icons next to other category listings and you can view the Discussion Notes on proposed restructuring for other G8x and G9x categories.

This is the “Change history” for Gj92 Chronic fatigue syndrome:

 
Next, with the ICD Content Tab selected, click on Gj92 Chronic fatigue syndrome and the Details for Gj92 Chronic fatigue syndrome will display on the right side of the screen. Allow a few moments for the text in the boxes to load.

With the Title & Definition Tab selected (the Tab may read Definition only, depending on whether you are viewing the iCAT production server or the Demo iCAT), you can view the

          Details for Gj92 Chronic fatigue syndrome 

To view a Glossary of Terms page, which defines the terms in the Tabs click on the blue question mark icons which will load the iCAT Glossary.

Content for Gj92 Chronic fatigue syndrome:

[See Glossary: Definition] The full text of External Definitions (imported from affiliate classification publications) which is partly hidden in the screenshot, is appended at end of this post.  According to discussion on the iCAT Users Google Group, it is proposed that External Definitions might be given less prominence when displaying in the iCAT.

 

Now click on the Terms Tab.

Terms for Gj92 Chronic fatigue syndrome:

Benign myalgic encephalomyelitis currently appears listed under Inclusions to Gj92 Chronic fatigue syndrome.

Note that Postviral fatigue syndrome is not listed under Inclusions and that Synonyms and Exclusions for Gj92 Chronic fatigue syndrome have yet to be populated. [See Glossary: Synonyms, Inclusions, Exclusions]

Very few of the other Content Tabs have been populated but it is envisaged that they will be in due course.

 
I provide no screenshots for Benign myalgic encephalomyelitis or Postviral fatigue syndrome because these are not listed in the iCAT Linearized ICD Categories List. [See Glossary: ICD Title, Synonyms, Inclusions, Exclusions]

Extract from the iCAT Glossary

6. Inclusions

Short definition: Inclusion terms are either synonyms of the category titles or subclasses which are not represented in the classification hierarchy.

Details: Inclusion terms appear in the tabular list of the traditional print version and show users that entities are included in the relevant concept.  All of the ICD-10 inclusion terms have been imported and accessible in the iCat.  These are either synonyms of the category titles or subclasses which are not represented in the classification hierarchy. Since we have synonyms as a separate entity in our ICD-11 content model, the new synonyms suggested by the users should go into the synonyms section.  In the future, iCat will provide a mechanism to identify whether an inclusion is a synonym or a subclass.

7. Exclusions

Short definition: Exclusion terms help users eliminate entities that should be assigned to a different ICD category because of differences in meaning or terminology.

Details: Exclusion terms help users eliminate entities that should be assigned to a different ICD category because of differences in meaning or terminology.

 

I am including some screenshots of other Chapters which will be of interest.

Chapter 5 (V) Somatoform Disorders at F45 (currently same as or near ICD-10). 

(It is understood from ICD documentation that the child categories F45.40 and  F45.41 are new entities for ICD-11. Note these categories do not mirror the proposals of the DSM-5 “Somatic Symptom Disorder” Work Group.)

 

Neurasthenia remains in Chapter 5 (V) at F48.0:

 

Inclusions and Exclusions for Neurasthenia:

 

Chapter 18 (XVIII) displaying R53 Malaise and fatigue (this is the Chapter under which the US Clinical Modification, ICD-10-CM, proposes classifying Chronic fatigue syndrome, at R53.82):

 

Inclusions and Exclusions for R53 Malaise and fatigue:

 

Here are the two Category discussion Notes that appear directly beneath 06 VI Diseases of the nervous system (no ICD10 concepts from Chapter 06 VI are currently moved into either of these “holding pens”).

1 Discussion Note for: Needing a decision to be made

 

1 Discussion Note for: To be retired

________________________________________________________________________

  

External Definitions: (Imported from affiliate classification publications, these remain the same as my 6 May posting.)

External Definitions for Gj92 Chronic fatigue syndrome

A syndrome of unknown etiology. Chronic fatigue syndrome (CFS) is a clinical diagnosis characterized by an unexplained persistent or relapsing chronic fatigue that is of at least six months duration, is not the result of ongoing exertion, is not substantially alleviated by rest, and results in substantial reduction of previous levels of occupational, educational, social or personal activities. Common concurrent symptoms of at least six months duration include impairment of memory or concentration, diffuse pain, sore throat, tender lymph nodes,headaches of a new type, pattern, or severity, and nonrestorative sleep. The etiology of CFS may be viral or immunologic. Neurasthenia and fibromyalgia may represent related disorders. Also known as myalgic encephalomyeltis.

Ontology ID UMLS/NC12007_05
E

distinctive syndrome characterized by chronic fatigue, mild fever, lymphadenopathy, headache, myalgia, arthralgia, depression, and memory loss: candidate eitiological agents include Epstein-Barr and other herpesviruses.

Ontology ID UMLS/CSP2006

A syndrome characterized by persistent or recurrent fatigue, diffuse musculoskeletal pain, sleep disturbances, and subjective cognitive impairment of 6 months duration or longer. Symptoms are not caused by ongoing exertion; are not relieved by rest; and result in a substantial reduction of previous levels of occupational, educational, social or personal activities. Minor alterations of immune, neuroendocrine, and automatic function may be associated with this syndrome. There is also considerable overlap between this condition and FIBROMYALGIA.
(From Semin Neurol 1998;18(2):237-42: Ann Intern Med 1994 Dec 15;121(12):953-9)

Ontology ID UMLS/MSH2008_2
008_02_04

 

Based only on the information visible in the iCAT as it stood at 24 May 2010, it appears that instead of:

ICD-10 (version for 2007) Tabular List

http://apps.who.int/classifications/apps/icd/icd10online/?gg90.htm+g933

Chapter VI (6)

Diseases of the nervous system
(G00-G99)

[…]

Other disorders of the nervous system
(G90-99)

[…]

G93 Other disorders of brain

[…]

G93.3 Postviral fatigue syndrome
           Benign myalgic encephalomyelitis

(with Chronic fatigue syndrome indexed to G93.3 in Volume 3: The Alphabetical Index)

that what may be being proposed at this point is:

that     G83.9-G99.8 codes in ICD-10 Chapter VI: Diseases of the nervous system are being restuctured;

that     G93 Other disorders of brain is removed as a parent category for G93.x codings;

that     GN Other disorders of the nervous system

is now the parent to a large number of categories previously classified between G83.9 and G99.8

that     GN Other disorders of the nervous system is the parent to

            Gj92 (Sorting label) Chronic fatigue syndrome

that     Gj92 Chronic fatigue syndrome is included in ICD-11 Chapter 06 VI Diseases of the nervous system (Neurology chapter) in the ICD Categories list as an ICD Title term; 

that there is currently displaying no Gj9x Sorting label (or any other Sorting label) listing for Postviral fatigue syndrome or Benign myalgic encephalomyelitis in ICD Categories list or any Category Details for either term;

(Whether this is because Inclusion terms appear in the tabular list of the traditional print version but not in the iCAT version, or because of proposed hierarchy changes to the relationship between these three terms or because text remains to be entered into the iCAT for these two terms, cannot be determined from the information available at 10 June – please refer to Glossary of Terms which sets out the relationships between an ICD Title and its inclusion in the iCAT Categories list and between an ICD Title and its Synonyms, Inclusions and Exclusions.)

that    Gj92 Chronic fatigue syndrome is an ICD Title term with a Details page, a Definition and an Inclusion term (but with no Synonyms or Exclusions or other fields yet populated);

that    Benign myalgic encephalomyelitis is listed as an Inclusion to Gj92 Chronic fatigue syndrome

that in    Chapter 5 (V) Details for F48.0 Neurasthenia
            “postviral fatigue syndrome” is specified as an Exclusion to F48.0 with the Reference

             G93.3 -> Gj92 Chronic fatigue syndrome

that in    Chapter 18 (XVIII) Details for R53 Malaise and Fatigue 

            “fatigue syndrome postviral” [sic] is specified as an Exclusion with the References

            F48.0 -> F48.0 Neurasthenia, [which is also an Exclusion to R53 Malaise and Fatigue]
            G93.3 -> Gj92 Chronic fatigue syndrome

but that in the absence of further information, it is currently unclear what the proposed hierarchical status of Postviral fatigue syndrome and Benign myalgic encephalomyelitis will be in relation to Chronic fatigue syndrome, and in relation to each other.  (A request for clarification was made in late June 2010 to Dr Raad Shakir, Chair, Topic Advisory Group for Neurology, but a response is still awaited at March 2011.)

 

[1] Key documents:

a) ICD-11 Revision Project Plan – Draft 2.0 (v March 10) [PDF format]
Describes the ICD revision process as an overall project plan in terms of goals, key streams of work, activities, products, and key participants.

b) Content Model Specifications and User Guide  (v April 10)
Identifies the basic properties needed to define any ICD concept (unit, entity or category) through the use of multiple parameters.

A more recent version of the Content Model document was uploaded to the ICD Revision site on 22 February 2011.

It can be accessed here on the ICD Revision site:

View Word document

Download Word document

Or opened here on DSM-5 and ICD-11 Watch site: Content Model Reference Guide v January 2011

c) Alpha Drafting Workflow (v 06.10.09)
Sets out lines of responsibility between the various contributors for the alpha drafting phase.

Filed under iCAT, ICD revision process, ICD-10, ICD-10-CM, ICD-11, ICD-11 Alpha Draft, ICD-11 consultation, ICD-11 revision docs, WHO (World Health Organization)

New WHO YouTube videos: ICD-11 and ICTM

May 24, 2010 by

New WHO YouTube videos: ICD-11 and ICTM

Post #44 Shortlink: http://wp.me/pKrrB-IP

ICD-11 Alpha Draft

It was anticipated that an Alpha Draft for ICD-11 would be ready by 10 May. ICD Revision Steering Group has issued no news release around a launch but I will update as soon as information becomes available.

My previous report “ICD-11 Alpha Draft scheduled to launch between 10 and 17 May” can be read here on DSM-5 and ICD-11 Watch.

 

ICD on YouTube

Two new videos have been added to the WHOICD11 YouTube channel.

WHOICD11 Channel YouTube:

http://www.youtube.com/user/WHOICD11

ICD-11 Alpha Draft 11 May 2010 [3.46 mins]

Brief introduction to the development of ICD-11.

ICD-11 ICTM March 2010 [10.40 mins]

International Classification of Traditional Medicine consulation

This three day WHO consultation on traditional medicine was held in Geneva, in March. The meeting discussed a proposal for an International Classification of Traditional Medicine (ICTM) to parallel the ICD.

The ICTM is projected for 2014 as a new member of the WHO Family of International Classifications (WHO FIC). The vision for ICTM is to produce an international, standardised classification system of terminology, definitions, safety and treatment properties for traditional, complementary and alternative medicine according to a common content model.

All 13 ICD YouTube videos are collated on this page on this DSM-5 and ICD-11 Watch site sub page:

ICD-11 YouTubes: http://wp.me/PKrrB-eV

Filed under ICD on YouTube, ICD revision process, ICD-10, ICD-11, ICD-11 Alpha Draft, ICD-11 consultation, ICD-11 revision docs, WHO (World Health Organization)

ICD-11 Alpha Draft scheduled to launch between 10 and 17 May

May 6, 2010 by

ICD-11 Alpha Draft scheduled to launch between 10 and 17 May

Post #42 Shortlink: http://wp.me/pKrrB-GT

NOTE: The post below is superceded by Post # 46:

PVFS, ME, CFS: the ICD-11 Alpha Draft and iCAT Collaborative Authoring Platform

Shortlink Post #46: http://wp.me/pKrrB-KK

Note that until the ICD-11 Alpha Draft is released, it cannot be determined how far the various Topic Advisory Groups have progressed with proposals for revising ICD-10 classifications or with populating definitions and other content according to the ICD Content Model. Proposals for revision of classifications and textual content may differ from the examples on the Demo and Training iCAT platform as it appeared on the date this posting was compiled (accessed 06.05.10).

Also note that information in this report applies to the revision of ICD-10 towards ICD-11. Countries using a “Clinical Modification” of ICD, for example, Canada (ICD-10-CA), the USA (implementing ICD-10-CM, in October 2013), Australia (ICD-10 AM) and Germany (ICD-10-GM) should refer to their specific national modification of ICD.

Information on the launch of ICD-11 Alpha Draft

The revision of ICD-10 is overseen by a Revision Steering Group (RSG) and being undertaken by a number of Topic Advisory Groups (TAGs) via a collaborative authoring platform called the iCAT (Initial ICD-11 Collaborative Authoring Tool) using wiki-like software.

Topic Advisory Groups have responsibility for revision of the various chapters, formulating definitions and diagnostic criteria for the relevant categories and suggesting changes to the classification structure.

Since 2007, anyone has been able to submit proposals to the various Topic Advisory Groups for changes or additions to ICD-10 via the ICD Update and Revision Platform. This is not the iCAT, but an extranet where any registered user has been able to submit proposals backed up with citations.

You can register for access, here:
https://extranet.who.int/icdrevision/nr/login.aspx?ReturnUrl=%2ficdrevision%2fdefault.aspx

The WHO has scheduled a press launch of the ICD-11 Alpha Draft and the iCAT electronic authoring platform between 10 – 17 May.

You can see how the iCAT operates in this series of ICD Revision YouTubes: http://wp.me/PKrrB-eV

Once launched, the iCAT will be viewable to anyone who registers for access. But there will be varying levels of editing authority which will initially be restricted to WHO Classification Experts, WHO Secretariat, ICD-11 Revision Steering Group, the Managing Editors and members of Topic Advisory Groups and working groups and the reviewers and expert advisers recruited by the TAG Managing Editors to assist with the reviewing of content.

There is also an iCAT User Group for which anyone can register for membership.

It is anticipated that the public will not be able to interact with the iCAT, for example, to add comment on proposals, until after the Beta Draft has been released for public review and consultation in 2011. But following the launch of the Alpha Draft, it should be possible, to monitor the progress and population of content.

I have requested clarification of whether the names of external reviewers recruited by TAG Managers will be identified within the iCAT and whether the public will be able to track reviewers’ input and comments as content proposals are progressed through the Alpha Drafting Workflow.

ICD Revision maintains a Google website here: https://sites.google.com/site/icd11revision/home

The site publishes agendas and minutes for ICD Revision meetings and also PowerPoint presentations and revision documents. Some of these documents are works in progress and revised versions are uploaded from time to time on this page and on the Face-to Face Meetings pages:
https://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp/documents
https://sites.google.com/site/icd11revision/home/face-to-face-meetings

There are links for several key documents in Footnotes [1].

The WHO publishes only ICD-10 Volume 1: The Tabular List and ICD-10 Volume 2: The Instruction Manual, online. Summaries of WHO meetings in 2007 and presentations in 2008, proposed that all three volumes of ICD-11 should be freely accessible via the internet. When ICD-11 is disseminated (2014+), all volumes, including Volume 3: The Alphabetical Index, will be electronically published and accessible online.

In ICD-10 Volume 1: The Tabular List, “Postviral fatigue syndrome” is classified in Chapter VI (6) Diseases of the nervous system under G93 Other disorders of brain, coded G93.3.

“Benign myalgic encephalomyeltis” is also coded at G93.3.

http://apps.who.int/classifications/apps/icd/icd10online/?gg90.htm+g933
https://dxrevisionwatch.wordpress.com/icd-11-me-cfs/

In ICD-10, “Chronic fatigue syndrome” is listed in Volume 3: The Alphabetical Index, only, where it is indexed to G93.3.

To date, ICD Revision has been silent around the inclusion (or not) of “Chronic fatigue syndrome” in Volume 1: The Tabular List, in ICD-11.

Nor has ICD Revision published any intention that it proposes to revise the existing Index code for “Chronic fatigue syndrome” for ICD-11 or that “Chronic fatigue syndrome” should be placed in a chapter other than Chapter VI (6), to which it is currently indexed, if it were the case that ICD Revision is considering the inclusion of “Chronic fatigue syndrome” in Volume 1: The Tabular List.

My websites and reports make no assumptions about what proposals might be made by any of the Topic Advisory Groups for the potential inclusion of “Chronic fatigue syndrome” in Volume 1, in ICD-11. But since all three volumes of ICD-11 will be integrable, it is reasonable to anticipate that “Chronic fatigue syndrome” might be included in Volume 1 in this forthcoming edition. (See Footnote [2])

ICD-11 will drop the use of Roman numerals for chapter numbering, so we shall be monitoring, for example, the development of Chapter 5: Mental and behavioural disorders (TAGMH) and Chapter 6: Diseases of the nervous system (TAG Neurology).

The “Start-up List”

The starting point for the Alpha Draft is the “Start-Up List” of categories that has been drafted by WHO to initiate the editing process. This list includes current ICD-10 content, input from ICD national modifications, primary care versions and speciality adaptations, textual definitions imported from affiliate classification publications, proposals received to revise the existing ICD via the Update and Revision Platform and other channels.

During alpha drafting, detailed structured definitions will be added to these ICD categories according to a common template – the “Content Model”.

The “Content Model”

According to ICD Revision, the most important difference between ICD-10 and ICD-11 will be the “Content Model”.

The Content Model is designed to support detailed descriptions of the clinical characteristics of each category and clear relationships to other terminologies and classifications. It identifies the basic characteristics needed to define any ICD category through use of multiple parameters (eg Body Systems, Body Parts, Signs and Symptoms, Diagnostic Findings, Causal Agents, Mechanisms, Temporal Patterns, Severity, Functional Impact, Treatment interventions, Diagnostic Rules).

So there is the potential for considerably more content to be included for diseases, disorders and syndromes for any given entity in ICD-11 than currently appears in ICD-10.

There are examples of several disease entities populated in accordance with the Content Model on the ICD Revision website. The most recent version of the Content Model can be downloaded from this page:
https://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp2-2010/documents

or open the file here:

Word Document: Doc2b
Content Model Specifications and User Guide
http://tinyurl.com/ICD11ContentModelApril10

See also this paper:

“A Content Model for the ICD-11 Revision”
http://bmir.stanford.edu/file_asset/index.php/1522/BMIR-2010-1405.pdf

How advanced will the Alpha Draft be when it is launched?

According to this late 2009 document: http://tinyurl.com/SummaryiCAMPSept09

It was projected that

“Volume I of ICD-11 Alpha Draft will be published with full Morbidity Linearization ( like ICD-10 fourth edition ) including definitions for at least 80% of the categories. 20% of the entries should have content model parameters completed.

“Volume II of ICD-11 Alpha Draft will be published as a prototype with guidelines and rules to the use of the classification for mortality and morbidity use cases.

“Volume III Index: will be presented both a Digital Search Tool and possible paper version”

The most recent iCamp2 (2010) and Revision Steering Group Meetings took place on 19-23 April, in Geneva. The agenda is available here: http://tinyurl.com/AgendaiCAMP2April10

Revising ICD via the iCAT platform towards a publication comprising three integrable volumes capable of continuous revision in response to new scientific evidence is an ambitious and technically complex operation. ICD-11 is being authored collaboratively by Topic Advisory Group Managers, members and reviewers who are scattered all over the world and who are undertaking these roles in addition to their professional commitments. At present, 136 scientists from 36 countries and all WHO regions are contributing to the work.

The Minutes of the April RSG meeting are not yet available and it’s not clear how on target the Alpha Draft remains or whether the goals for May 2010 have had to be revised.

To view the iCAT Demo and training platform:

Go to the ICD-11 Revision site:

https://sites.google.com/site/icd11revision/home/

then to this page:

iCAT – Initial ICD-11 Collaborative Authoring Tool
https://sites.google.com/site/icd11revision/home/icat

and click on this link:

The demo and training iCAT platform: http://icatdemo.stanford.edu/

this will link to the server hosting the iCAT Demo and Training Platform where you can see how the iCAT will function. (Give it a little time to load.)

Once you are into the iCAT demo, you can poke about:

Click on the “ICD Content” Tab (second Tab on left)

Open the + next to ICD Categories, if the drop down list is not already displaying

Open the + next to 06 VI Diseases of the nervous system

Open the + next to G90-G99 Other disorders of the nervous system

Open the + next to G93 Other disorders of brain

Click on G93.3 Postviral fatigue syndrome

On the Right of your screen:

Click on the “Definition Tab” if it is not already selected

You should see the following:

ICD Code* G93.3

ICD Title Postviral fatigue syndrome

Definition (Text currently unpopulated)

*For a Glossary of Terms click on the ? next to the Field Titles which link to a general page setting out the terms and template for content population within ICD-11.

(URL for this Glossary page is: http://apps.who.int/classifications/apps/icd/icatfiles/iCAT_Glossary.html#definition  )

There are no Definitions populated in this demo for the entry for “Postviral fatigue syndrome”.

Note that until the actual ICD-11 Alpha Draft is released, it cannot be determined how far the various Topic Advisory Groups have progressed with populating content according to the ICD Content Model for the categories of interest to us.

Some “External definitions” have been entered into the demo.

Note these have been imported from other classification systems, either as part of the initial “Start-up List” used to kick start the revision process, or are being used as examples of a populated field.

Again, we need to wait until the draft comes out to see how many fields have been populated so far, their textual content, and the editing status of their content.

External definitions:

Three definitions are currently displaying. (These three definitions are collated on this site along with their sources):
http://www.fpnotebook.com/Rheum/Sx/ChrncFtgSyndrm.htm

iCAT field: External definitions:

A syndrome of unknown etiology. Chronic fatigue syndrome
(CFS) is a clinical diagnosis characterized by an unexplained
persistent or relapsing chronic fatigue that is of at least six
months duration, is not the result of ongoing exertion, is not
substantially alleviated by rest, and results in substantial reduction
of previous levels of occupational, educational, social
or personal activities. Common concurrent symptoms of at least
six months duration include impairment of memory or concentration,
diffuse pain, sore throat, tender lymph nodes,headaches of a new
type, pattern, or severity, and nonrestorative sleep.
The etiology of CFS may be viral or immunologic. Neurasthenia
and fibromyalgia may represent related disorders. Also known as
myalgic encephalomyeltis.

Ontology ID UMLS/NC12007_05
E

distinctive syndrome characterized by chronic fatigue, mild fever,
lymphadenopathy, headache, myalgia, arthralgia, depression, and
memory loss: candidate eitiological agents include Epstein-Barr and
other herpesviruses.

Ontology ID UMLS/CSP2006

A syndrome characterized by persistent or recurrent fatigue,
diffuse musculoskeletal pain, sleep disturbances, and subjective
cognitive impairment of 6 months duration or longer. Symptoms
are not caused by ongoing exertion; are not relieved by rest; and
result in a substantial reduction of previous levels of occupational,
educational, social or personal activities. Minor alterations of
immune, neuroendocrine, and automatic function may be
associated with this syndrome. There is also considerable
overlap between this condition and FIBROMYALGIA. (From Semin
Neurol 1998;18(2):237-42: Ann Intern Med 1994 Dec 15;121(12):
953-9)

Ontology ID UMLS/MSH2008_2
008_02_04

Very few Tabs have been populated in this demo version of the iCAT:

Terms

Synomyms: Not yet populated

Inclusions: Benign myalgic encephalomyeltis

Exclusions: Not yet populated

Clinical Description; Body System; Body Part not yet populated

Entire brain (body structure) Term ID 258335003
Brain structure (body structure) Term ID 12738006

Diagnostic Criteria; Causal Mechanism and Risk Factors not yet populated

Causal Mechanism Virus (organism) Term ID 49872002

Risk Factors; Genomic Linkages; Etiology Type; Causal Mechanism; Functional Impact; SNOMED References not yet populated etc.

Go back to the ICD Content Tab list and open the page for Chapter 5 (V) Mental and behavioural disorders.

Then open the + for F40-F48 Neurotic, stress-related and somatoform disorders

Then open “F45 Somatoform disorders”

where the existing categories in ICD-10 Chapter V: Somatoform disorders are listed.

Note they are listed as they currently appear in ICD-10, as set out in this Comparison Table and are not congruent with any current proposals by the DSM-5 Work Group for Somatic Symptoms Disorders for the proposed major restructuring of the “Somatoform Disorders” categories, as published in the DSM-5 draft
proposals for diagostic criteria, on 10 February:

Comparison Table: https://dxrevisionwatch.com/wp-content/uploads/2010/01/dsm-icd-equiv3.png

“Harmonization” and integration of ICD-11 with DSM-5

There is already a degree of correspondence between DSM-IV and Chapter V of ICD-10. For the next editions, the APA and the WHO have committed as far as  possible: “To facilitate the achievement of the highest possible extent of uniformity and harmonization between ICD-11 mental and behavioural disorders and DSM-V disorders and their diagnostic criteria” with the objective that “The WHO and APA should make all attempts to ensure that in their core versions, the category names, glossary descriptions and criteria are identical for ICD and DSM.”

It should be evident from the iCAT demo that there is the potential for considerably more content to be included in ICD-11 than there is in ICD-10 and that the progress of the population of content for the categories of interest to us is going to need continuous monitoring as the Topic Advisory Groups and their reviewers work towards the Beta Draft.

I shall update as more information on the launch of the alpha and iCAT becomes available over the next couple of weeks.

————————-

Footnotes:

[1] Key documents:

Content Model Specifications and User Guide (v April 10)
Identifies the basic properties needed to define any ICD concept (unit, entity or category) through the use of multiple parameters.
http://tinyurl.com/ICD11ContentModelApril10

ICD-11 Revision Project Plan – Draft 2.0 (v March 10)
Describes the ICD revision process as an overall project plan in terms of goals, key streams of work, activities, products, and key participants.
http://www.who.int/classifications/icd/ICDRevisionProjectPlan_March2010.pdf

Alpha Drafting Workflow (v 06.10.09)
Sets out lines of responsibility between the various contributors for the alpha drafting phase.
https://dxrevisionwatch.com/wp-content/uploads/2010/01/alpha-drafting-workflow-27-01-10.doc

Further documents eg Style Guide, ICD-11 Conventions:
https://sites.google.com/site/icd11revision/home/face-to-face-meetings/icamp/documents

[2] The Introduction to ICD-10 Volume 3: The Alphabetical Index lists several possible relationships between a term included in the Alphabetical Index and a term included in the Tabular List to which it is indexed:

“The terms included in the category of the Tabular List are not exhaustive; they serve as examples of the content of the category or as indicators of its extent and limits. The Index, on the other hand, is intended to include most of the diagnostic terms currently in use. Nevertheless, reference should always be made back to the Tabular List and its notes, as well as the guidelines provided in Volume 2, to ensure that the code given by the Index fits with the information provided by a particular record.

“Because of its exhaustive nature, the Index inevitably includes many imprecise and undesirable terms. Since these terms are still occasionally encountered on medical records, coders need an indication of their assignment in the classification, even if this is to a rubric for residual or ill-defined conditions. The presence of a term in this volume, therefore, should not be taken as implying approval of its usage.”

and, according to a February 2009 response from WHO HQ Classifications, Terminology and Standards Team, terms that are listed in the Index may be:

a synonym to the label (title) of a category of ICD;
a sub-entity to the disease in the title of a category;
or a “best coding guess”.

In indexing “Chronic fatigue syndrome” to G93.3, ICD-10 does not specify how it views the term in relation to “Postviral fatigue syndrome” or in relation to “Benign myalgic encephalomyelitis”. Nor does ICD-10 specify how it views the relationship between “Postviral fatigue syndrome” and “Benign  myalgic encephalomyelitis”.

Filed under DSM revision process, ICD on YouTube, ICD revision process, ICD-10, ICD-11, ICD-11 Alpha Draft, ICD-11 consultation, ICD-11 in the media, ICD-11 revision docs, WHO (World Health Organization)

ICD Revision: TAG Neurology and TAG Mental Health members

March 23, 2010 by

ICD Revision: TAG Neurology and TAG Mental Health members

Post #26 Shortlink: http://wp.me/pKrrB-DB

The two ICD Revision Topic Advisory Groups (TAGs) that are the primary focus of this site are:

Topic Advisory Group for Mental Health
Topic Advisory Group for Neurology

ICD Revision has published information on the make up of the new International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders (TAGMH) and the Topic Advisory Group for Neurology (TAG Neurology). The professional and scientific organisations that have been asked to appoint representatives to these two groups and the names of their representatives are also published.

Topic Advisory Group for Mental Health

The International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders was constituted by the WHO for a period of two years (2007 – 2008) with the primary task of advising the WHO on all steps leading to the revision of the mental and behavioural disorders classification in ICD-10, in line with the overall ICD revision process.

The initial period of operation has now expired and the group has been reconstituted and reappointed for the next two year period. The appointment of the Harmonization Group and other working groups reporting to the Advisory Group has also now expired, and new working groups will be appointed based on the current needs of the revision.

The Advisory Group is co-ordinated by Senior Project Officer, Dr Geoffrey M Reed, PhD, who is seconded to the Department of Mental Health and Substance Abuse, WHO, Geneva, through the IUPsyS (International Union for Psychological Science). The Department of Mental Health and Substance Abuse will also be managing the technical part of the revision of Diseases of the Nervous System (currently Chapter VI), as it is doing for Chapter V.

The group is chaired by Steven E Hyman, MD, Harvard University, Cambridge, Massachusetts, USA, a former Director of the National Institute of Mental Health (NIMH) and a member of the DSM-5 Task Force.

Mental Health Topic Advisory Group

Tasks

The Mental Health TAG reviews categories in ICD-10 relating to mental health and mental illness. The diseases within the scope of the Mental Health TAG are primarily located in Chapter 5 (Mental and Behavioural Disorders). The TAG also formulates definitions and diagnostic criteria for the relevant categories, and suggests changes to the classification structure.

Progress

TAG Mental Health was formed in January, 2007 to work on 11th Revision of the ICD. In 2009, new members were appointed to fill open positions and to meet specific needs prior to the group’s most recent face-to-face meeting in September 2009. The TAG Mental Health will hold its next face-to-face meeting 21-23 June 2010 in Geneva, Switzerland.

Last Updated: 3 February 2010

For membership of TAG Mental Health see this PDF:

Mental Health Topic Advisory Group Feb 10

The first meeting of the reconstituted Advisory Group took place on 28 – 29 September 2009, in Geneva. There have been no other meetings since the December 2008 meeting of the former group.

Summary Reports of meetings held by the International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders (currently ICD-10 Chapter V) are published on the WHO main website [PDF format]

1st Meeting: 11 – 12 January 2007, Geneva |
2nd Meeting: 24 – 25 September 2007, Geneva |
3rd Meeting: 11 – 12 March 2008, Geneva |
4th Meeting 1 – 2 December 2008, Geneva |

A Summary Report of the 5th meeting of the group which was held on 28 – 29 September 2009, has yet to be published.

Topic Advisory Group for Neurology

The lead WHO Secretariat for TAG Neurology is Dr Tarun Dua, Management of Mental and Brain Disorders, Department of Mental Health and Substance Abuse, WHO, Geneva. Dr Dua co-ordinated the Atlas Multiple Sclerosis Resources in the World 2008, a collaboration between the World Health Organization and the Multiple Sclerosis International Federation. Dr Dua was a co-author of the World Health Organization publication Neurological Disorders: Public Health Challenges, 2006 or download by Chapters in PDF format

The group is chaired by Dr Raad Shakir, Imperial College London, London, UK

Neurology Topic Advisory Group

Tasks

The Neurology TAG reviews categories in ICD that relate to neurologic diseases. These diseases are found throughout ICD-10, principally within Chapter 6 (Diseases of the nervous system). The TAG also formulates definitions and diagnostic criteria for the relevant categories, and suggests changes to the classification structure.

Progress

The TAG Neurology was formed under consultation by WHO. The TAG met for their first meeting 22-23 June 2009. A managing editor for the alpha drafting of ICD-11 is identified. Discussions regarding changes to the linearization have started. The Neurology TAG will have its second Face-to-Face Meeting 18-19 February 2010 in Geneva, Switzerland.

Last Updated: 2010-04-02

For membership of TAG Neurology see this PDF:

Neurology Topic Advisory Group Feb 10

 

I am not aware of any meeting summaries, reports or updates published so far by TAG Neurology.

Filed under ICD revision process, ICD-10, ICD-11, ICD-11 consultation, ICD-11 revision docs, Somatoform Disorders, WHO (World Health Organization)

ICD on YouTube: ICD-11 ICF ICD ICAMP January 2010

February 5, 2010 by

ICD on YouTube: ICD-11 ICF ICD ICAMP Face to Face meeting January 2010

Post #14 Shortlink Post: http://wp.me/pKrrB-x7

IWHOCD11 Channel   [6.59 mins]

ICD-11 ICF ICD ICAMP January 2010.mp4

Related information:

WHO iCAMP ICD-ICF Linkages Meeting, Geneva, 28–29 January 2010: New documents on ICD-11 Revision site

 

Filed under ICD on YouTube, ICD revision process, ICD-10, ICD-11, ICD-11 consultation, ICD-11 in the media, ICD-11 revision docs, WHO (World Health Organization)

WHO iCAMP ICD-ICF Linkages Meeting: New documents on ICD-11 Revision site

January 29, 2010 by

WHO iCAMP ICD-ICF Linkages Meeting, Geneva, 28–29 January 2010: New documents on ICD-11 Revision site

Post #12 Shortlink: http://wp.me/pKrrB-v8

A two day iCAMP Face-to-Face Meeting was held on 28 to 29 January, in Geneva, Switzerland.

ICF = International Classification of Functioning, Disability and Health

Wikipedia article

“International Classification of Functioning, Disability and Health, also known as ICF, is a classification of the health components of functioning and disability. The ICF classification complements WHO’s International Classification of Diseases-10th Revision (ICD), which contains information on diagnosis and health condition, but not on functional status. The ICD and ICF constitute the core classifications in the WHO Family of International Classifications (WHO-FIC).”

List of Participants, Meeting Agenda, Background Documentation, PowerPoint presentations and other documents can be found here on the Face-to-Face Meeting page, ICD-11 Revision Site: ICD-ICF Linkages Meeting

Three documents that may be of interest:

Note: It is not yet known how much textual content might be included in ICD-11: Volume 1, and ICD-11: Volume 3: The Alphabetical Index, for the terms that are the focus for this site. But this is the most recent version of this important document and it needs to be scrutinised.

Style Guide for the Content Model of the ICD-11 Alpha draft

The “Content Model” identifies the basic properties needed to define any ICD concept (unit, entity or category) through the use of multiple parameters.

Most recent version of Content Model Style Guide (at 27.01.10)

Note: Project milestones on Page 5 gives a release date for the ICD-11 Alpha draft as February 2010.  Other current ICD Revision resources give a date of May 2010.

ICD Revision Project Executive Summary

Project milestones and budget, and organizational overview  Page 5

New document: ICD Revision Project Executive Summary (at 25.01.10)

Alpha Drafting Workflow

Sets out lines of responsibility between the various contributors for the alpha drafting phase.
TAG = Topic Advisory Group; RSG = Revision Steering Group.

• TAG members and TAG workgroup members
• Classification Experts. (mainly the experts on the classification with respect to the mortality and morbidity use cases)
• TAG managing Editors
• Reviewers who are asked to review portions of the content in a structured fashion
• TAGs
• RSG
• WHO

Alpha Drafting Workflow (at 06.10.09)

Additional resources and documents are being posted by ICD Revision on a dedicated public access site. Some of these documents are works in progress and subject to internal review and revision. Please refer to the site for the most recent versions. The three documents posted here are as they stood at 28 January 2010.

ICD-11 Revision site  |  Revision and iCAMP meeting resources

ICD-11 Revision site Documents Page  |  Key revision documents

Filed under ICD revision process, ICD-10, ICD-11, ICD-11 consultation, ICD-11 revision docs, WHO (World Health Organization)

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