ICD-11 Round up: April #1

ICD-11 Round up: April #1

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[PMID 23583019]

The Lancet, Early Online Publication, 11 April 2013
doi:10.1016/S0140-6736(12)62191-6

Proposals for mental disorders specifically associated with stress in the International Classification of Diseases-11

Maercker A, Brewin CR, Bryant RA, Cloitre M, Reed GM, Ommeren MV, Humayun A, Jones LM, Kagee SA, Llosa AE, Rousseau C, Somasundaram DJ, Souza R, Suzuki Y, Weissbecker I, Wessely SC, First MB, Saxena S.

Mental disorders specifically associated with stress are exceptional in needing external events to have caused psychiatric symptoms for a diagnosis to be made. The specialty of stress-associated disorders is characterised by lively debates, including about the extent to which human suffering should be medicalised, 1 and the purported overuse of the diagnosis of post-traumatic stress disorder (PTSD). 2 Most common mental disorders are potentiated or exacerbated by stress and childhood adversity…

Contributors
AM, CRB, RAB, MC, GMR, MvO, SW, MBF, and SS were the core writing group. AH, LJ, SAK, AEL, CR, DS, RS, YS, and IW discussed the text and gave feedback to the core writing group.
Conflicts of interest
AM, CRB, RAB, MC, AH, LJ, SAK, CR, DS, SCW, and YS are members of the WHO ICD-11 Working Group on the Classification of Disorders Specifically Associated with Stress, reporting to the WHO International Advisory Group for the Revision of ICD-10 Mental and Behavioural Disorders. GMR, MvO, and SS are members of the WHO Secretariat, Department of Mental Health and Substance Abuse. AEL, RS, IW, and MBF are special invitees to Working Group meetings. However, the views expressed in this article are those of the authors and, except as specifically noted, do not represent the official policies or positions of the International Advisory Group or WHO.
[Subscription required for full paper. A PDF may be available on authors’ personal websites or academic websites.]

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According to CDC’s, Donna Picket, as reported by AHIMA (American Health Information Management Association), “ICD-11 would likely not be ready for implementation in the US until after 2020.”

AHIMA

Update: ICD-11 on Track For 2015

Melanie Endicott | AHIMA & ICD-10 & ICD-10/CAC Summit | April 23, 2013

While the United States is preparing to implement ICD-10-CM/PCS on October 1, 2014, the World Health Organization (WHO) is anticipating a 2015 release of ICD-11. Taking into account the need to then clinically modify the WHO version, ICD-11 would likely not be ready for implementation in the US until after 2020. Donna Pickett, MPH, RHIA, medical systems administrator at Centers for Disease Control and Prevention/National Center for Health Statistics, delivered an update on the progress of ICD-11 development in Monday’s presentation “ICD-11 Update” at the 2013 AHIMA ICD-10-CM/PCS and Computer-Assisted Coding Summit, taking place in Baltimore, MD this week...  Read on

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Go here to view ICD-11 Beta drafting platform public version

http://www.who.int/classifications/icd/revision/betaexpectations/en/

ICD-11 Beta: Expectations, Concerns and Known Issues

Information for Beta Participants

ICD-11 Beta Phase started on 14 May 2012. The objective is to have a final ICD-11 version by 2015. This announcement clarifies that ICD-11 Beta version is not final, and will be enhanced by input from multiple stakeholders during the beta phase, which will last 3 years.

Caveats
Problems and Issues
Concerns and Criticisms etc

http://www.who.int/classifications/icd/revision/en/index.html

Revision

Participate in ICD Revision
Video invitation to participate
Frequently Asked Questions About ICD-11
ICD Information Sheet
ICD Revision Information Notes
Register to become involved
Timelines
Content Model
Definitions etc

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Presentation | T Bedirhan Üstün

ICD Revision Summary presentation: Quality and Safety Topic Advisory Group meeting, New York, April 2-3, 2013.

ICD11 Quality and Safety TAG 2013 Presentation | Slideshare

According to this presentation, by WHO’s Bedirhan Üstün, all ICD-11 Topic Advisory Groups (TAGs) have finished their editing of the structure. A good deal of work remains for the population of content, in accordance with the ICD-11 Content Model, across all chapters and on compatibility of linearizations across primary care, specialty and detailed research versions.

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Presentation [PDF Format, no PP viewer required]

Revising the ICD Definition of Intellectual Disability: Implications and Recommendations | March 19, 2013

Intellectual Disability’s Long Journey: George Jesien, Ph.D., Executive Director, Association for University Centers on Disabilities (AUCD)
Intellectual Disability and the Revision of ICD-10 Mental and Behavioural Disorders: Geoffrey M. Reed, Department of Mental Health and Substance Abuse, WHO
AAIDD Proposed Recommendations for ICD-11: Marc J. Tassé, Nisonger Center – UCEDD, The Ohio State University, Webinar

On Slides 17 and 18, Classification System Most Used and Classification Most Used by Country, graphics for data from WPA-WHO Survey of Practicing Psychiatrists* on global use of ICD-10, ICD-8/9, DSM-IV and Other diagnostic system(s).

*World Psychiatry. 2011 Jun;10(2):118-31.

The WPA-WHO Global Survey of Psychiatrists’ Attitudes Towards Mental Disorders Classification.

Reed GM, Mendonça Correia J, Esparza P, Saxena S, Maj M.

Abstract

Full free paper

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Medscape

Schizophrenia Bulletin

Schizophr Bull.2012;38(5):895-898.

Status of Psychotic Disorders in ICD-11

Wolfgang Gaebel

Abstract and full report

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‘Somatic Symptom Disorder’ in Current Biology, 22 April, 2013

‘Somatic Symptom Disorder’ in Current Biology

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The April 22 edition of Current Biology publishes a feature article on DSM-5 by science writer, Michael Gross, Ph.D.

The article includes quotes from Suzy Chapman and Allen Frances on the implications for diverse patient groups for the introduction of the new Somatic Symptom Disorder into the next edition of the DSM, scheduled for release in May.

The article also mentions the influence of Somatic Symptom Disorder on proposals for a new ICD category – Bodily Distress Disorder – being field tested for ICD-11 and ICD-11-PHC [1].

…Chapman and Frances are concerned that the new definition of SSD will also be reflected in ICD-11. ICD-11 is field testing a new category Bodily Distress Disorder proposed to replace six or seven existing ICD-10 somatoform disorders, which, according to working group reports on emerging proposals, mirrors the DSM-5 somatic symptom disorder definition, says Chapman.

The article can be read in full at:

Current Biology 22 April, 2013 Volume 23, Issue 8

Copyright 2013 All rights reserved. Current Biology, Volume  23, Issue  8, R295-R298, 22 April 2013
doi:10.1016/j.cub.2013.04.009

Feature

Has the manual gone mental?

Michael Gross

Full text: http://www.cell.com/current-biology/fulltext/S0960-9822(13)00417-X

PDF: http://download.cell.com/current-biology/pdf/PIIS096098221300417X.pdf

1 ICD-11 Beta drafting platform: Chapter 5: Bodily Distress Disorder: Mild; Moderate; Severe

Three BMJ letters published in response to Somatic Symptom Disorder commentary

Three letters are published this week in response to Allen Frances’ BMJ commentary on ‘Somatic Symptom Disorder’

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On March 19, BMJ published a commentary by Allen Frances, MD, with contribution from Suzy Chapman, in both the print and online editions, strongly opposing the inclusion of ‘Somatic Symptom Disorder’ in the forthcoming DSM-5:

PERSONAL VIEW
The new somatic symptom disorder in DSM-5 risks mislabeling many people as mentally ill
This new condition suggested in the bible of mental health diagnoses lacks specificity, says Allen Frances

The opinion piece was also featured as US Editor’s Choice:

DSM-5 and the rough ride from approval to publication
Edward Davies, US news and features editor, BMJ

BMJ press released the commentary which was picked up by a number of international media sites including UK Times and Deborah Brauser for Medscape Medical News. To date, 31 Rapid Responses have been received.

Three letters (all US respondents) are printed in this week’s BMJ print edition (20 April 2013 Vol 346, Issue 7904). The letters are behind a paywall so I am giving links to the original BMJ Rapid Responses, with the caveat that responses may have been edited for the print edition:

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LETTERS
New somatic symptom disorder in DSM-5

Helping to find the most accurate diagnosis

BMJ 2013; 346 doi: http://dx.doi.org/10.1136/bmj.f2228 (Published 16 April 2013) BMJ 2013;346:f2228
Joel E Dimsdale, professor of psychiatry emeritus, Michael Sharpe, professor of psychiatry, Francis Creed, professor of psychiatry, DSM-5 Somatic Symptom Disorders work group  BMJ Rapid Response 20 March 2013

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Guilty of diagnostic expansion

BMJ 2013; 346 doi: http://dx.doi.org/10.1136/bmj.f2254 (Published 16 April 2013) BMJ 2013;346:f2254
James Phillips, psychiatrist, USA  BMJ Rapid Response 25 March 2013

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A step in the wrong direction

BMJ 2013; 346 doi: http://dx.doi.org/10.1136/bmj.f2233 (Published 16 April 2013) BMJ 2013;346:f2233
Steven A King, chair, DSM-IV and DSM-IV-TR pain disorders committees; Pain Management and Psychiatry, New York  BMJ Rapid Response 28 March 2013

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Further reading:

Somatic Symptom Disorder could capture millions more under mental health diagnosis Suzy Chapman, May 26, 2012
Mislabeling Medical Illness As Mental Disorder Allen Frances, MD, Psychology Today, DSM 5 in Distress, December 8, 2012
Why Did DSM 5 Botch Somatic Symptom Disorder? Allen Frances, MD, Psychology Today, Saving Normal, February 6, 2013
New Psych Disorder Could Mislabel Sick as Mentally Ill Susan Donaldson James, ABC News, February 27, 2013
Dimsdale JE. Medically unexplained symptoms: a treacherous foundation for somatoform disorders? Psychiatr Clin North Am 2011;34:511-3. [PMID: 21889675]

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American Psychiatric Association justifications for SSD:

APA Somatic Symptom Disorder Fact Sheet 
Somatic Chapter Drops Centrality Of Unexplained Medical Symptoms Psychiatric News, Mark Moran, March 1, 2013
Somatic Symptoms Criteria in DSM-5 Improve Diagnosis, Care David J Kupfer, MD, Chair, DSM-5 Task Force, defends the SSD construct, Huffington Post, February 8, 2013

Site design in transition

Post #236 Shortlink: http://wp.me/pKrrB-2Mc
Image belgianchocolate Creative CommonsFor some time now, this site has run on WordPress theme ‘Garland’ with the Custom Design CSS upgrade. It’s time for a change.

Over the coming weeks I’ll be sampling a couple of other themes – this is WordPress ‘Truly Minimal.’

The site will be in a state of flux while I settle on a new template and customize it to better suit my content. So the appearance of the site, the font colours, leading, background and the way that quotes display may change from day to day.

With the publication of DSM-5 imminent, I shall also be taking some time over the coming months to attend to site housekeeping, updating tab pages and archiving older material.

WordPress themes are optimized for FireFox. If viewing in IE 8, 9 or 10, please view in IE Compatibility Mode or use Firefox or Chrome. Depending on OS and browser and settings, the fonts used for the site header and post headings in this theme (Droid Sans and Droid Serif) may be rendered better by IE 10 than by Firefox or Chrome.

image credit | belgianchocolate | creative commons

DSM-5 publication date May 22: American Psychiatric Association to release DSM-5 between May 18-22, San Francisco

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DSM-5 publication date May 22: American Psychiatric Association to release DSM-5 between May 18-22, San Francisco

After 14 years and with a staggering $25 million thrown at it, the 5th edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) will be launched during the American Psychiatric Association’s (APA) Annual Meeting in San Francisco, May 18-22, 2013.

The Bumper Book of Head Stuff has cost $25,000 a page.

“…ignore DSM 5. It is not official. It is not well done. It is not safe. Don’t buy it. Don’t use it. Don’t teach it.”

Commentary: “Does DSM 5 Have a Captive Audience?” Saving Normal, Allen Frances, MD

Further revisions and refinements to the criteria sets and disorder descriptions, following closure of the third and final stakeholder review and comment period (June 15, 2012) and the finalizing of texts in December and January, are embargoed and won’t be evident until the manual is released, next month.

Draft proposals, as they had stood on the DSM-5 Development site for the third stakeholder review, were removed from the APA’s website last November. Additional pages archiving draft proposals for DSM-5 Development internal use which remained publicly accessible were put behind a webmaster log in, around mid March.

(No drafts of the expanded texts that accompany the disorder sections and categories have been available for public scrutiny at any stage in the drafting process.)

The official publication date for DSM-5 is May 22 for the U.S. (May 31 for UK). The manual is 1000 pages and costs nearly $200 for the hardcover edition. An electronic version of the DSM-5 is understood to be in development for later this year.

According to this December 1 interview with Task Force Chair, David J Kupfer, MD, for the Washingtonian,

…While it will likely be some time before we can expect a DSM-6, it may only be a few years until a DSM-5.1 or -5.2, thanks to the expected digital version of the manual. “We don’t wait to wait another 19 to 20 years to have a new revision of the whole volume,” says Kupfer. “But if there is some unexpected consequence, which we can’t anticipate, we have an opportunity to fix something two to three years from now.”

A DSM-5 Table of Contents listing the new disorder sections and category names for DSM-5 (but not the criteria sets) can be accessed on this APA page.

Also at that URL – fact sheets, articles and videos for selected categories, which are being added to every few weeks (including justifications for some of the more controversial changes and new inclusions), and the following documents relating to the overall development process:

Insurance Implications of DSM-5 (New document)
Highlights of Changes from DSM-IV-TR to DSM-5 (updated April 5, 2013)
From Planning to Publication: Developing DSM-5
The Organization of DSM-5
The People Behind DSM-5

A number of books are publishing around the DSM-5 this April and May:

The Intelligent Clinician’s Guide to the DSM-5® by Joel Paris (Apr 17, 2013)

The Book of Woe: The DSM and the Unmaking of Psychiatry by Gary Greenberg  (May 2, 2013) (also available as an Audio Book and Audio CD)

Saving Normal: An Insider’s Revolt Against Out-of-Control Psychiatric Diagnosis, DSM-5, Big Pharma, and the Medicalization of Ordinary Life by Allen Frances (May 14, 2013)

Essentials of Psychiatric Diagnosis: Responding to the Challenge of DSM-5 by Allen Frances MD (May 17, 2013)

Making the DSM-5: Concepts and Controversies by Joel Paris and James Phillips (May 31, 2013)

Recent press releases

December 1, 2012: APA Release No. 12-43 American Psychiatric Association Board of Trustees Approves DSM-5 (includes Attachment A: Select Decisions Made by APA Board of Trustees)

January 18, 2013: APA Release No. 13-06 DSM-5 Now Available for Preorder

February 28, 2013:  APA Release No. 13-11 APA Annual Meeting in San Francisco, May 18-22; DSM-5 to be Released

April 9, 2013: APA Release No. 13-19 APA 2013 Annual Meeting Special Track to Present DSM-5 Changes

DSM and DSM-5 are registered trademarks of the American Psychiatric Association.

Many faces of somatic symptom disorders, International Review of Psychiatry

Many faces of somatic symptom disorders, International Review of Psychiatry February 2013

Post #234 Shortlink: http://wp.me/pKrrB-2Kl

Cavia15

Buried within the ‘Disorders Description’ document, published with the Somatic Symptom Disorders Work Group proposals for the second DSM-5 stakeholder review, are three brief references to children:

“The presentation of these symptoms may vary across the lifespan. A corroborative historian with a life course perspective may provide important information for both the elderly and for children.”

“PFAMC [Psychological Factors Affecting Medical Condition] can occur across the lifespan. Particularly with young children, corroborative history from parents or school can assist the diagnostic evaluation.”

“In the elderly somatic symptoms and comorbid medical illnesses are more common, and thus a focus on criteria B becomes more important. In the young child, the ‘B criteria’ may be principally expressed by the parent.” [1]

1 Somatic Symptom Disorders Work Group ‘Disorders Description’ document, Second draft review, May 2011

APA evidently intends its new Somatic Symptom Disorder for application in children with chronic, distressing symptoms; or where the parent of a child with chronic, distressing symptoms is perceived to be expressing ‘disproportionate and persistent concerns,’ or ‘maladaptive’ coping strategies, or devoting ‘excessive time and energy’ to [a child’s] symptoms or health concerns or demonstrating ‘dysfunctional and maladaptive beliefs’ about symptoms or disease.

The finalized texts that expand on disorder descriptions in the DSM-5 manual are under embargo and it won’t be known until May what guidance (if any) is included for practitioners for the application of SSD and PFAMC in children and adolescents.

But there are no specific references, guidance or cautions for the application of SSD or PFAMC in children within the draft criteria sets, as they had stood at the last stakeholder review, nor within the proposals and brief rationale texts published with the third draft.

And there are no specific references to the application of PFAMC in children, or SSD in children and parents within the APA’s Somatic Symptom Disorder Fact Sheet or the Highlights of Changes from DSM-IV-TR to DSM-5 document, or in this Mark Moran Psychiatric News article justifying the proposals.

Not surprising, then, that the use of this new SSD construct in children and young people, or as applied to the parent(s) of a child with chronic somatic symptoms has received little discussion within the field or in the advocacy arena.

In DSM-IV-TR, PFAMC was listed under ‘Other Conditions That May Be a Focus of Clinical Attention.’ For DSM-5, APA has approved the shifting of PFAMC “from its obscure place in the back of prior DSM editions into the Somatic Symptom Disorders chapter” where it now attracts a mental disorder code. (Another issue that has attracted scant attention.)

What evidence for safety of application of SSD in children?

Very little is known about the APA’s field trials for what was at that point known as ‘CSSD’ (Complex Somatic Symptom Disorder). There is no publicly available information on patient selection or study design.

The make-up of the three field trial study groups was presented at conference as: a ‘diagnosed illness’ group (n=205), comprising patients with cancer or coronary disease; a ‘functional somatic’ group (n=94), comprising patients with irritable bowel syndrome and ‘chronic widespread pain’ (a term often used as an alternative to ‘fibromyalgia’; and a considerably larger ‘healthy’ control group.

There is no evidence that either SSD or PFAMC has been field tested by APA or investigated by any other group for safety and reliability of application in children and young people – an issue raised in my recent BMJ Rapid Response: What evidence for safety of application of SSD in children? March 27, 2013.

The lack of a body of rigorous evidence to support the validity and safety of the new SSD construct in adults (and especially in older patients who are more likely to be living with multiple age onset diseases and subject to polypharmacy and the potential for somatic symptoms resulting from medication side effects or drug interactions) is disturbing.

Joel Dimsdale’s insouciant, “If it doesn’t work, we’ll fix it in the DSM-5.1 or DSM-6” is particularly disturbing in the absence of evidence for the safety and validity of the application of SSD in children and adolescents.

For ICD-11, the current proposal is to replace or subsume six or seven existing ICD-10 Somatoform Disorder categories with a new category, Bodily Distress Disorder. According to emerging proposals for ICD-11-PHC (the primary care version of ICD-11), BDD is proposed to include DSM-5‘s new [C]SSD [1] [2].

Does ICD-11 intend its proposed BDD to be applied to children and adolescents? On what evidence does the ICD-11 working group for the revision of ICD-10’s Somatoform Disorders, the Topic Advisory Group for Mental Health, the ICD-11 Revision Steering Group and WHO classification experts rely for the validity of BDD as a construct and its application in children?

1 Goldberg DP. Comparison between ICD and DSM diagnostic systems for mental disorders. In: Sorel E, ed. 21st century global mental health. Jones & Bartlett Learning, 2012:37-53. Free Sample Chapter 2: Page 50
2 Creed F, Gureje O. Emerging themes in the revision of the classification of somatoform disorders. Int Rev Psychiatry 2012;24:556-67. PMID:23244611

Other than the two papers, below, I have yet to find any other papers which reference or specifically discuss the operationalization of the SSD criteria in children and adolescents.

Schulte IE, Petermann F: Somatoform disorders: 30 years of debate about criteria! What about children and adolescents? J Psychosom Res 2011; 70:218-228. [PMID: 21334492] Abstract

“The aim of this study was to evaluate the suitability of the complex somatic symptom disorder, proposed by the DSM-V Somatic Symptom Disorders Workgroup, in classifying children and adolescents who suffer severely from medically unexplained symptoms.”

That paper is cited by this 2012 paper, below, for which a full PDF is available:

http://www.hdbp.org/psychiatria_danubina/pdf/dnb_vol24_no4/dnb_vol24_no4_353.pdf

Ghanizadeh, G, Ali Firoozabadi, A. A review of somatoform disorders in DSM-IV and somatic symptom disorders in proposed DSM-V. Psychiatria Danubina 12/2012; 24(4):353-8.

which addresses a question, “Is it suitable for children and adolescents?” under “SOME OTHER CHANGES AND CONCERNS ABOUT NEW CLASSIFICATION”

If readers are aware of other papers discussing the application of SSD in children I’d be pleased to have information.

Many faces of somatic symptom disorders, International Review of Psychiatry February 2013

As far as one can tell from the abstracts, none of the recently published papers below appears to discuss the application of the new SSD diagnosis in children, young people and families:

A free access editorial and abstracts for 11 papers in the February issue of International Review of Psychiatry:

http://informahealthcare.com/toc/irp/25/1

Volume 25, Number 1 (February 2013) Somatic Symptoms Disorders

Please refer to site for links to free Abstracts and subscription papers.

GUEST EDITOR: Santosh K. Chaturvedi

Editorial
Many faces of somatic symptom disorders
Santosh K. Chaturvedi

International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 1–4.

Free PDF Plus: http://informahealthcare.com/doi/pdfplus/10.3109/09540261.2012.750491

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Somatic symptom disorders and illness behaviour: Current perspectives
Kirsty N. Prior, Malcolm J. Bond
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 5–18.
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Diagnostic criteria for psychosomatic research and somatic symptom disorders
Laura Sirri, Giovanni A. Fava
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 19–30.
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Measurement and assessment of somatic symptoms
Santosh K. Chaturvedi, Geetha Desai
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 31–40.
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Somatization and somatic symptom presentation in cancer: A neglected area
Luigi Grassi, Rosangela Caruso, Maria Giulia Nanni
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 41–51.
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Somatic symptoms in consultation-liaison psychiatry
Sandeep Grover, Natasha Kate
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 52–64.
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Association of somatoform disorders with anxiety and depression in women in low and middle income countries: A systematic review
Rahul Shidhaye, Emily Mendenhall, Kethakie Sumathipala, Athula Sumathipala, Vikram Patel
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 65–76.
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‘I’m more sick than my doctors think’: Ethical issues in managing somatization in developing countries
Prabha S. Chandra, Veena A. Satyanarayana
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 77–85.
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Review of somatic symptoms in post-traumatic stress disorder
Madhulika A. Gupta
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 86–99.
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Somatic symptoms in primary care and psychological comorbidities in Qatar: Neglected burden of disease
Abdulbari Bener, Elnour E. Dafeeah, Santosh K. Chaturvedi, Dinesh Bhugra
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 100–106.
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Psychopharmacotherapy of somatic symptoms disorders
Bettahalasoor Somashekar, Ashok Jainer, Balaji Wuntakal
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 107–115.
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Behavioural and psychological management of somatic symptom disorders: An overview
Mahendra P. Sharma, M. Manjula
International Review of Psychiatry Feb 2013, Vol. 25, No. 1: 116–124.