New paper by Wolfe et al on reliability and validity of SSD diagnosis in patients with Rheumatoid Arthritis and Fibromyalgia

Post #295 Shortlink: http://wp.me/pKrrB-3LP

This post is an update to Post #284, November 17, 2013, titled:

Correspondence In Press in response to Dimsdale et al paper: Somatic Symptom Disorder: An important change in DSM

In December 2013, Journal of Psychosomatic Research published four letters in response to the Dimsdale el al paper including concerns from Winfried Häuser and Frederick Wolfe for the reliability and validity of DSM-5’s new Somatic symptom disorder:  The somatic symptom disorder in DSM 5 risks mislabelling people with major medical diseases as mentally ill.

A new paper has been published by PLOS One on February 14, 2014:

Symptoms, the Nature of Fibromyalgia, and Diagnostic and Statistical Manual 5 (DSM-5) Defined Mental Illness in Patients with Rheumatoid Arthritis and Fibromyalgia Frederick Wolfe, Brian T. Walitt, Robert S. Katz, Winfried Häuser

The paper is published under Open Access and includes the full SSD criteria in Table S1

The paper’s references include the following commentaries and an article by science writer, Michael Gross:

Frances A, Chapman S (2013) DSM-5 somatic symptom disorder mislabels medical illness as mental disorder. Australian and New Zealand Journal of Psychiatry 47: 483–484. doi: 10.1177/0004867413484525 [PMID 23653063]

Frances A (2013) The new somatic symptom disorder in DSM-5 risks mislabeling many people as mentally ill. BMJ: British Medical Journal 346. doi: 10.1136/bmj.f1580 [PMID 23511949]

Gross M (2013) Has the manual gone mental? Current biology 23: R295–R298. doi: 10.1016/j.cub.2013.04.009 Full text

Full paper, Tables and Figures in text or PDF format:

Symptoms, the Nature of Fibromyalgia, and Diagnostic and Statistical Manual 5 (DSM-5) Defined Mental Illness in Patients with Rheumatoid Arthritis and Fibromyalgia Frederick Wolfe, Brian T. Walitt, Robert S. Katz, Winfried Häuser

Text version

PDF version

Abstract

Purpose

To describe and evaluate somatic symptoms in patients with rheumatoid arthritis (RA) and fibromyalgia, determine the relation between somatization syndromes and fibromyalgia, and evaluate symptom data in light of the Diagnostic and Statistical Manual-5 (DSM-5) criteria for somatic symptom disorder.

Methods

We administered the Patient Health Questionnaire-15 (PHQ-15), a measure of somatic symptom severity to 6,233 persons with fibromyalgia, RA, and osteoarthritis. PHQ-15 scores of 5, 10, and 15 represent low, medium, and high somatic symptom severity cut-points. A likely somatization syndrome was diagnosed when PHQ-15 score was ≥10. The intensity of fibromyalgia diagnostic symptoms was measured by the polysymptomatic distress (PSD) scale.

Results

26.4% of RA patients and 88.9% with fibromyalgia had PHQ-15 scores ≥10 compared with 9.3% in the general population. With each step-wise increase in PHQ-15 category, more abnormal mental and physical health status scores were observed. RA patients satisfying fibromyalgia criteria increased from 1.2% in the PHQ-15 low category to 88.9% in the high category. The sensitivity and specificity of PHQ-15≥10 for fibromyalgia diagnosis was 80.9% and 80.0% (correctly classified = 80.3%) compared with 84.3% and 93.7% (correctly classified = 91.7%) for the PSD scale. 51.4% of fibromyalgia patients and 14.8% with RA had fatigue, sleep or cognitive problems that were severe, continuous, and life-disturbing; and almost all fibromyalgia patients had severe impairments of function and quality of life.

Conclusions

All patients with fibromyalgia will satisfy the DSM-5 “A” criterion for distressing somatic symptoms, and most would seem to satisfy DSM-5 “B” criterion because symptom impact is life-disturbing or associated with substantial impairment of function and quality of life. But the “B” designation requires special knowledge that symptoms are “disproportionate” or “excessive,” something that is uncertain and controversial. The reliability and validity of DSM-5 criteria in this population is likely to be low.

 

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Reminder: Next meeting of ICD-10-CM/PCS Coordination and Maintenance Committee: March 19-20, 2014

Post #290 Shortlink: http://wp.me/pKrrB-3F1

Update at February 15, 2014:

Tentative diagnosis agenda posted for March 19–20, 2014 meeting on CDC site:

This list of tentative diagnosis agenda topics is not final. The final topics material will be available electronically from the NCHS web site prior to the meeting.

If you are unable to attend the meeting in person there will be conference lines available on the day of the meeting. Individuals do not need to register on line for the meeting if planning to dial in.

NCHS/CMS will be broadcasting the meeting live via Webcast at: http://www.cms.gov/live/

The next meeting of the ICD-10-CM/PCS Coordination and Maintenance Committee is scheduled for March 19–20, 2014. If you are planning to attend the meeting in person you will need to register, online, by March 14.

ICD-10-CM/PCS Coordination and Maintenance Committee Meeting

Public forum to discuss proposed changes to ICD-10-CM and ICD-10-PCS

Wednesday, March 19, 2014 – Thursday, March 2o, 2014

CMS Auditorium, Baltimore, MD

Agendas for the meeting will be posted in February 2014.

If phone lines and live webinar are made available the information will be posted closer to the meeting date.

Day One | Time: 03/19/2014 9:00 AM – 5:00 PM CMS Auditorium

Session: ICD-10-CM/PCS Coordination and Maintenance Committee Meeting
The first day of the meeting, March 19, 2014, will be devoted to procedure code issues.

Day Two | Time: 03/20/2014 9:00 AM – 5:00 PM CMS Auditorium

Session: ICD-10-CM/PCS Coordination and Maintenance Committee Meeting
The second day of the meeting, March 20, 2014 will be devoted to diagnosis code topics.

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The National Center for Health Statistics (NCHS) and the Centers for Medicare and Medicaid Services (CMS) are the U.S. governmental agencies responsible for overseeing all changes and modifications to the ICD-9-CM and draft ICD-10-CM/PCS.

NCHS is also responsible for the development of ICD-10-CM, adapted from the WHO’s ICD-10 for U.S. specific use.

The 2014 release of the draft ICD-10-CM (which replaces the July 2013 release) can be viewed or downloaded here.

ICD-10-CM is scheduled for implementation on October 1, 2014. Until that time the codes in ICD-10-CM are not valid for any purpose or use.

New concepts are added to ICD-10-CM based on the established update process for ICD-9-CM (the ICD-9-CM Coordination and Maintenance Committee) and the World Health Organization’s ICD-10 (the Update and Revision Committee).

Meetings of the Coordination and Maintenance Committee are co-chaired by a representative from NCHS and from CMS. Responsibility for  maintenance of the ICD-9-CM is divided between these two agencies, with classification of diagnoses by NCHS and procedures by CMS.

The name of the Committee will change to the ICD-10-CM/PCS Coordination and Maintenance Committee with the March meeting, as the last updates to ICD-9-CM/PCS took place on October 1, 2013.

Meetings are held twice yearly, in public, at CMS headquarters in Baltimore, MD. The next meeting is scheduled for March 19–20, 2014. The fall meeting is scheduled for September 23–24, 2014.

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Coordination and Maintenance Committee

The Committee provides a public forum to discuss proposed modifications, code changes, updates and corrections to the diagnosis codes in ICD-10-CM and procedural codes in ICD-10-PCS.

Public participation can also take place via phone conference link and live webinar. (Details for both in the Agenda documents.)

Agendas are posted approximately one month prior to the meetings. Diagnostic and procedural proposal Topic Packets, meeting materials, hand outs and presentation slides are posted on the CDC and CMS websites shortly before a meeting.

Up until 2011, transcripts of meeting proceedings were provided. Provision of transcripts is now replaced with videocasts for the full, two-day proceedings, available from the CMS website and posted on YouTube, and a brief Meeting Summary report, available from the CDC site shortly after the meeting.

For attendance in person, prior registration is required, via the CMS meeting registration website. Registration opens approximately one month  prior to a meeting and closes a few days before Day One of a meeting.

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Proposals for modifications, additions, corrections

Suggestions for modifications to ICD-10-CM/PCS come from both the public and private sectors. Since the draft ICD-10-CM is adapted from the WHO’s ICD-10, which is subject to an annual update process, some proposed modifications to ICD-10-CM may reflect updates to the ICD-10.

Interested parties (requestors) must submit proposals for modifications prior to a scheduled meeting and by a specific date. Proposals should be consistent with the structure and conventions of the classification. See Submission of Proposals for submission requirements and proposal samples.

Once proposals have been reviewed, requestors are contacted as to whether their proposal has been approved for presentation at the next Coordination and  Maintenance Committee meeting or not.

Approved proposals are presented at the meetings by representatives for professional bodies, advocacy organizations, clinicians, other professional stakeholders or members of the public with an interest, or are sometimes presented by an NCHS/CMS representative on behalf of a requestor.

No decisions on proposed modifications are made at the meetings. Recommendations and comments are reviewed and evaluated, once the comment period has closed, before final decisions are made.

The Coordination and Maintenance Committee’s role is advisory. All final decisions are made by the Director of NCHS and Administrator of CMS.

Final decisions are made at the end of the year and become effective October 1 of the following year.

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Submitting written comment on proposals presented at meetings

Comments on proposals are invited, at the meeting, at the end of each presentation, or may be submitted in writing following the meeting, during a one to two month duration public comment period.

Addresses for submitting comments are included in the Agenda Topic Packets published before the meetings. NCHS/CMS state that electronic submissions are greatly preferred over snail mail in order to ensure timely receipt of responses.

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Partial code freeze and timing of proposals

According to the Summary of Diagnosis Presentations for the September 18–19, 2013 meeting (for which the comment period closed on November 15):

“Except where noted, all topics are being considered for implementation on October 1, 2015. The addenda items are being considered for implementation prior to October 1, 2014.”

(“ICD-10-CM TABULAR OF DISEASES – PROPOSED ADDENDA” Tabular and Index modification proposals are set out on Diagnosis Agenda Pages 60-66.)

Note that some proposals in the Diagnosis Agenda were requested for insertion in October 2014 as Inclusion Terms to existing codes, with new codes proposed to be created for October 2015, notably, the 6 proposals to insert new DSM-5 disorders into ICD-10-CM presented by Darrel Regier, MD, on behalf of the American Psychiatric Association (Diagnosis Agenda Pages 32-44).

Whether the 17 modifications proposed on Pages 45-46 under “Additional Tabular List Inclusion Terms for ICD-10-CM” which were presented en masse by CDC’s, Donna Pickett, (which include the proposals to add the new DSM-5 “Somatic symptom disorder” and “Illness anxiety disorder” as Inclusion Terms to existing ICD-10-CM F45.x codes) are intended for implementation in October 2014 or in October 2015 is not explicit in the Diagnosis Agenda.

For the September 18–19, 2013 meeting, when submitting written comments, responders were asked to consider the following:

Whether they agree with a proposal, disagree (and why), or have an alternative proposal to suggest. But were also invited to comment on the timing of those proposals that were being requested for approval for October 2014:

Does a request for a new diagnosis or procedure code meet the criteria for implementation in October 2014 during a partial code freeze* based on the criteria of the need to capture a new technology or disease; or should consideration for approval be deferred to October 2015? And separately, to comment on the creation of a specific new code for the condition effective from October 1, 2015 (where requested).

Any code requests that do not meet the criteria [for inclusion during a partial freeze] will be evaluated for implementation within ICD-10-CM on and after October 1, 2015 once the partial freeze has ended and regular (at least annual) updates to ICD-10-CM/PCS resume.

*Partial Code Freeze of Revisions to ICD-9-CM and ICD-10-CM/PCS

  • October  1, 2011 is the last major update of ICD-9-CM. Any further revisions to ICD-9-CM will only be  for a new disease and/or a  procedure  representing new technology.  Revisions will  be posted on this website as addenda (revisions to procedures are posted on  the CMS website).
  • After  October 1, 2011 there will be no further release of ICD-9-CM on CD-ROM.
  • October  1, 2011 is the last major update of ICD-10-CM/PCS until October 1, 2015.
  • Between  October 1, 2011 and October 1, 2015 revisions to ICD-10-CM/PCS will be for new  diseases/new technology procedures, and any minor revisions to correct reported errors in these classifications.
  • Regular (at least annual) updates to ICD-10-CM/PCS will resume on October 1, 2015.

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Public comments not made public

Note that written public comments received by NCHS (Diagnosis) and CMS (Procedural) on proposals requested via these meetings are not aggregated and made publicly accessible. Nor are the names of organizations, professional bodies, individuals or others who have submitted comments listed publicly. It is not possible to scrutinize the number, provenance or substance of the comments received in support of, or in opposition to requests for modifications to ICD-10-CM presented via these meetings. Nor are NCHS/CMS’s rationales for the approval or rejection of requests for modifications to diagnosis or procedural codes on public record.

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September 18–19, 2013 meeting

A substantial number of modifications were proposed via the September 2013 meeting for both procedural and diagnosis codes. These are set out in the Agenda/Topic Packet PDF documents:

Diagnosis Codes Agenda

Procedural Codes Agenda

Meeting Materials

Videocasts for full two day meeting proceedings and Meeting Materials (collated on Dx Revision Watch site)

Summary of Diagnosis Presentations 

The ICD-9-CM timeline (for the remainder of its life) and the ICD-10-CM/PCS timeline are set out on Pages 3-8 of the Diagnosis Agenda.

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Key dates for the forthcoming March 19–20, 2014 meeting

January 17, 2014: deadline for submitting topics to be discussed at the March 19–20, 2014 ICD-10-CM/PCS Coordination and Maintenance Committee (reached).

February 14: registration for attendance opens.

March 14: deadline for registration.

Go here for registration details. (CMS confirmed to me via email on 01.23.13 that the deadline for registration is March 14, not February 14, as incorrectly published in the Diagnosis Agenda timeline.)

April 18, 2014: deadline for receipt of public comments on proposed codes and modifications tabled for March meeting. (Note there is only a 4 week period following this meeting during which written comments can be submitted.)

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Key ICD-10-CM/PCS Timeline dates extracted from full timeline, Pages 3-8, September 18-19, 2013 Diagnosis Agenda

March 19–20, 2014: ICD-10-CM/PCS Coordination and Maintenance Committee meeting.

April 1, 2014: There will be no new ICD-9-CM codes to capture new diseases or technology on April 1, 2014, since the last updates to ICD-9-CM will take place on October 1, 2013.

April 2014: Notice of Proposed Rulemaking to be published in the Federal Register as mandated by Public Law 99-509. This notice will include references to the complete and finalized FY 2015 ICD-10-CM diagnosis and ICD-10-PCS procedure codes. It will also include proposed revisions to the MS-DRG system based on ICD-10-CM/PCS codes on which the public may comment. The proposed rule can be accessed at: http://www.cms.gov/Medicare/Medicare-Fee-for-Service-Payment/AcuteInpatientPPS/index.html?redirect=/AcuteInpatientPPS/IPPS/list.asp

April 18, 2014: Deadline for receipt of public comments on proposed code [at March meeting.]

June 2014: Final addendum posted on web pages as follows:

Diagnosis addendumhttp://www.cdc.gov/nchs/icd/icd10cm.htm

Procedure addendumhttp://cms.hhs.gov/Medicare/Coding/ICD10/index.html

September 23–24, 2014: ICD-10-CM/PCS Coordination and Maintenance Committee 2014 meeting.

October 1, 2014: New and revised ICD-10-CM and ICD-10-PCS codes go into effect along with DRG changes. Final addendum posted on web pages as follows:

Diagnosis addendumhttp://www.cdc.gov/nchs/icd/icd9cm_addenda_guidelines.htm

Procedure addendumhttp://www.cms.gov/Medicare/Coding/ICD9ProviderDiagnosticCodes/addendum.html

November 2014: Any new ICD-10 codes required to capture new technology that will be implemented on the following April 1 will be announced. Information on any new codes to be implemented April 1, 2015 will be posted on the following websites:

http://www.cms.gov/Medicare/Coding/ICD9ProviderDiagnosticCodes/addendum.html

http://www.cdc.gov/nchs/icd/icd9cm_addenda_guidelines.htm

Clarification: Coalition for Diagnostic Rights website

Post #288 Shortlink: http://wp.me/pKrrB-3Dn

Clarification: Coalition for Diagnostic Rights

A website called Coalition for Diagnostic Rights has recently been launched.

The site includes references to Suzy Chapman and to Dx Revision Watch.

Suzy Chapman/Dx Revision Watch is not associated with or affiliated to the Coalition for Diagnostic Rights website or with any registered or unregistered organization associated with that site, and has no responsibility for content published on that site, or published in the name of that site on other platforms.

Suzy Chapman
Dx Revision Watch

DSM-5 November Round up #1

Post #285 Shortlink: http://wp.me/pKrrB-3zQ

Recent documents issued by the American Psychiatric Association at DSM-5 Development

Coding Changes Update: Important Coding and Criteria Updates: UPDATED 11/22/13

APA Statement issued 10.31.13: Statement on DSM-5 Text Error Pedophilic disorder text error to be corrected

Text Corrections: DSM-5 Paraphilic Disorders 10/31/13

Criteria Update: Updates to DSM-5 Adjustment Disorders: 10/15/13

Coding Changes Update: Neurocognitive Disorders Coding Updates: UPDATED 10/18/13

Psychiatric News Article: ICD Codes for Some DSM-5 Diagnoses Updated, Mark Moran, 10/7/13

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Commentary, Dx Summit

Attenuated Psychosis Syndrome Was Not Actually Removed from DSM-5

by Sarah Kamens

Note from Dx Revision Watch: Here is another codable diagnosis slipped in by APA before going to press. Between closure of the third DSM-5 draft review and publication of the final code sets a “Brief somatic symptom disorder,” where duration of symptoms is less than 6 months, was added under new category, “Other specified Somatic Symptom and Related Disorder” cross-walked to ICD 300.89 (F45.8) [DSM-5, Page 327]. This “Other specified” category can be used for symptom presentations that do not meet the full criteria for any of the disorders in the Somatic symptom and related disorders diagnostic class.
This means that as little as a single, distressing physical symptom + just one psychobehavioural symptom from the Somatic symptom disorder “B type” criteria, with less than 6 months chronicity would meet criteria for a codable mental disorder. A “Brief illness anxiety disorder” diagnosis of less than 6 months duration has also been inserted under this code – neither of which were in the third draft.

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Commentary from Christopher Lane, Ph.D., at Side Effects, Psychology Today:

The OECD Warns on Antidepressant Overprescribing Antidepressant consumption not matched by an increase in global diagnoses

Christopher Lane | November 22, 2013

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Commentary by Athena Bryan for Brown Political Review:

A Tale of Two Codices: the DSM, ICD and Definition of Mental Illness in America

Athena Bryan | November 21, 2013

Note from Dx Revision Watch: I have added a comment to this article, noting that APA has proposed the following new DSM-5 disorders for inclusion in the forthcoming U.S. specific ICD-10-CM via the September 18-19, 2013 meeting of the ICD-9-CM Coordination and Maintenance Committee: Binge eating disorder (BED); Disruptive mood dysregulation disorder (DMDD); Social (pragmatic) communication disorder; Hoarding disorder; Excoriation (skin picking) disorder; Premenstrual dysphoric disorder (PMDD); that DSM-5′s new constructs, Somatic symptom disorder (SSD) and Illness anxiety disorder were also proposed for insertion into the ICD-10-CM Tabular List and Index; that the ICD-10-CM is a “clinical modification” of WHO’s ICD-10 and is scheduled for U.S. implementation in October 2014; that its development from the ICD-10 has been the responsibility of NCHS.

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Three DSM-5 Somatic symptom disorder related items:

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Editorial British Journal of Psychiatry:

Editorial: Michael Sharpe, DSM-5 Somatic symptom disorder Work Group member BJP November 2013 203:320-321; doi: 10.1192/bjp.bp.112.122523:

Editorial: Somatic symptoms: beyond ‘medically unexplained’

Abstract:

Somatic symptoms may be classified as either ‘medically explained’ or ‘medically unexplained’ – the former being considered medical and the latter psychiatric. In healthcare systems focused on disease, this distinction has pragmatic value. However, new scientific evidence and psychiatric classification urge a more integrated approach with important implications for psychiatry.

Note from Dx Revision Watch: Unless NCHS rejects the proposal submitted at the September 18-19, 2013 meeting of the ICD-9-CM Coordination and Maintenance Committee, Somatic symptom disorder is destined for insertion into the ICD-10-CM Tabular List under F45 Somatoform Disorders as an inclusion term to F45.1 Undifferentiated somatoform disorder and for adding to the Alphabetic Index. See http://wp.me/pKrrB-3×1.

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Slide presentation: Francis Creed, University of Manchester, UK:

Can we now explain medically unexplained symptoms?

Francis Creed | Exeter, June 13, 2013 | PDF format

or open PDF [1.5MB] here Creed June 2013 slide presentation

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Book chapter: Polypharmacy in Psychiatry Practice, Volume I: Multiple Medication Use Strategies:

Polypharmacy in Psychiatry Practice, Volume I: Multiple Medication Use Strategies, Ritsner, Michael S (Ed.) 2013, XVII, 287 p ISBN: 978-94-007-5804-9 (Print) 978-94-007-5805-6 (Online)

Chapter 11: Multiple Medication Use in Somatic Symptom Disorders: From Augmentation to Diminution Strategies  

Most of Chapter 11, Pages 243-254 (pp 247-249 omitted) can be previewed on Google Books here

Correspondence In Press in response to Dimsdale et al paper: Somatic Symptom Disorder: An important change in DSM

Post #284 Shortlink: http://wp.me/pKrrB-3yQ

Update: The four letters, below, published In Press in Journal of Psychosomatic Research are now published in the December 2013 issue:

Issue: Vol 75 | No. 6 | December 2013 | Pages 497-588

Update: Editorial by Michael Sharpe, DSM-5 Somatic symptom disorder Work Group member

http://bjp.rcpsych.org/content/203/5/320.abstract
http://bjp.rcpsych.org/content/203/5/320.full.pdf+html

Editorial: Somatic symptoms: beyond ‘medically unexplained’

BJP November 2013 203:320-321; doi: 10.1192/bjp.bp.112.122523

Michael Sharpe FRCPsych, Department of Psychiatry, University of Oxford, Warneford Hospital, Oxford OX3 7JX, UK.

Abstract

Somatic symptoms may be classified as either ‘medically explained’ or ‘medically unexplained’ – the former being considered medical and the latter psychiatric. In healthcare systems focused on disease, this distinction has pragmatic value. However, new scientific evidence and psychiatric classification urge a more integrated approach with important implications for psychiatry.

A paper by DSM-5 Work Group members, Dimsdale JE, Creed F, Escobar J, Sharpe M, Wulsin L, Barsky A, Lee S, Irwin MR, Levenson J, titled Somatic Symptom Disorder: An important change in DSM, was published in the September issue of Journal of Psychosomatic Research.

There are four responses to this paper currently In Press. Subscription or payment is required to access the full text of these responses but the Dimsdale et al paper is now available free of charge:

http://www.jpsychores.com/inpress

http://www.jpsychores.com/article/S0022-3999(13)00345-0/fulltext

Correspondence

The somatic symptom disorder in DSM 5 risks mislabelling people with major medical diseases as mentally ill

DOI: 10.1016/j.jpsychores.2013.09.005

Winfried Häuser

Department of Internal Medicine I, Klinikum Saarbrücken, Saarbrücken, Germany
Department of Psychosomatic Medicine, Technische Universität München, München, Germany

Frederick Wolfe

National Data Bank for Rheumatic Diseases, Wichita, USA

In Press Corrected Proof Received 2 September 2013; accepted 25 September 2013. published online 28 October 2013.

Dimsdale and co-authors present data on the reliability, validity, and prevalence of the new DSM 5 category “Somatic Symptom disorder” (SSD) defined by persistent somatic symptoms in conjunction with…

http://www.jpsychores.com/inpress

http://www.jpsychores.com/article/S0022-3999(13)00349-8/fulltext

Correspondence

Diagnosis of somatic symptom disorder requires clinical judgment

DOI: 10.1016/j.jpsychores.2013.09.009

Joel E. Dimsdale

Department of Psychiatry, University of California, San Diego, United States
[Ed: DSM-5 SSD Work Group Chair]

James Levenson

Department of Psychiatry, Virginia Commonwealth University, United States
[Ed: DSM-5 SSD Work Group Member]

In Press Corrected Proof Received 27 September 2013; accepted 27 September 2013. published online 01 November 2013.

The diagnosis of somatic symptom disorder (SSD) rests on the presence of 3 factors—1. distressing and impairing somatic symptoms, 2. that are persistent at least 6 months, and 3. that are associated…

http://www.jpsychores.com/inpress

http://www.jpsychores.com/article/S0022-3999(13)00378-4/fulltext

Correspondence

A commentary on: Somatic symptom disorder: An important change in DSM

DOI:10.1016/j.jpsychores.2013.10.012

Winfried Rief

Clinical Psychology and Psychotherapy, University of Marburg, Marburg, Germany

Available online 1 November 2013

The songs of praise about DSM-5 and its innovations are disseminated through the media, and consequently, a positive evaluation of the new category of somatic symptom and associated disorders was published…

http://www.jpsychores.com/inpress

http://www.jpsychores.com/article/S0022-3999(13)00393-0/fulltext

Correspondence

Tradeoffs between validity and utility in the diagnosis of Somatic Symptom Disorder

DOI:10.1016/j.jpsychores.2013.10.015

Joel E. Dimsdale

Department of Psychiatry, University of California, San Diego, United States
[Ed: DSM-5 SSD Work Group Chair]

James Levenson

Department of Psychiatry, Virginia Commonwealth University, United States
[Ed: DSM-5 SSD Work Group Member]

Available online 31 October 2013

We appreciate the opportunity of responding to Professor Rief’s thoughtful letter concerning the thinking that guided our workgroup’s proposals for Somatic Symptom Disorder (SSD). When we started out…

in response to paper:

http://tinyurl.com/SSDPDFresearchgate [Download Free PDF from link on right of webpage.]

http://www.ncbi.nlm.nih.gov/pubmed/23972410

Somatic Symptom Disorder: An important change in DSM.

Dimsdale JE, Creed F, Escobar J, Sharpe M, Wulsin L, Barsky A, Lee S, Irwin MR, Levenson J.

J Psychosom Res. 2013 Sep;75(3):223-8. Epub 2013 Jul 25.

Abstract: http://www.jpsychores.com/article/S0022-3999(13)00265-1/abstract [Free]

Full text: http://www.jpsychores.com/article/S0022-3999(13)00265-1/fulltext

References: http://www.jpsychores.com/article/PIIS0022399913002651/references


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Commentaries on Somatic Symptom Disorder published in 2013 journal papers

In the June 2013 edition of Journal of Nervous and Mental Disorders, Allen Frances, MD, who chaired the Task Force for DSM-IV, discusses his concerns for the loosely defined DSM-5 category, Somatic Symptom Disorder, sets out his suggestions for revising the criteria prior to finalization, as presented to the SSD Work Group chair, in December 2012, and advises clinicians against using the new SSD diagnosis.

http://www.ncbi.nlm.nih.gov/pubmed/23719325

DSM-5 Somatic Symptom Disorder.

Frances A.

Department of Psychiatry, Duke University, Durham, NC.

J Nerv Ment Dis. 2013 Jun;201(6):530-1. doi: 10.1097/NMD.0b013e318294827c. No abstract available.

PMID: 23719325

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Commentary by Allen Frances, MD, and Suzy Chapman in the May 2012 issue of Australian and New Zealand Journal of Psychiatry. The paper discusses the over-inclusive DSM-5 Somatic Symptom Disorder criteria and the potential implications for diverse patient groups. The paper concludes by advising clinicians not to use the new SSD diagnosis.

http://www.ncbi.nlm.nih.gov/pubmed/23653063

DSM-5 somatic symptom disorder mislabels medical illness as mental disorder.

Allen Frances¹, Suzy Chapman²

1 Department of Psychiatry, Duke University 2 DxRevisionWatch.com

Aust N Z J Psychiatry. 2013 May;47(5):483-4. doi: 10.1177/0004867413484525. No abstract available.

PMID: 23653063

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The April 22, 2013 edition of Current Biology published a feature article on DSM-5 by science writer, Michael Gross, Ph.D. The article includes quotes from Allen Frances, MD, and Suzy Chapman on potential implications for patients for the application of the new DSM-5 Somatic Symptom Disorder. The article includes concerns for the influence of Somatic Symptom Disorder on proposals for a new ICD category – Bodily Distress Disorder – being field tested for ICD-11.

Current Biology 22 April, 2013 Volume 23, Issue 8

Copyright 2013 All rights reserved. Current Biology, Volume  23, Issue  8, R295-R298, 22 April 2013

doi:10.1016/j.cub.2013.04.009

Feature

Has the manual gone mental?

Michael Gross

Full text: http://www.cell.com/current-biology/fulltext/S0960-9822(13)00417-X

PDF: http://download.cell.com/current-biology/pdf/PIIS096098221300417X.pdf

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In a BMJ opinion piece, published March 2013, Allen Frances, MD, opposes the new Somatic Symptom Disorder, discusses lack of specificity, data from the field trials, and advises clinicians to ignore this new category.

PDF for full text

http://www.ncbi.nlm.nih.gov/pubmed/23511949

The new somatic symptom disorder in DSM-5 risks mislabeling many people as mentally ill.

Frances A.

Allen Frances, chair of the DSM-IV task force

BMJ. 2013 Mar 18;346:f1580. doi: 10.1136/bmj.f1580. No abstract available.

PMID: 23511949

[PubMed – indexed for MEDLINE]

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Somatic Symptom Disorder is also included in Saving Normal: An Insider’s Revolt Against Out-Of-Control Psychiatric Diagnosis, DSM-5, Big Pharma, and the Medicalization of Ordinary Life (pp. 193-6): Allen Frances, William Morrow & Company (May 2013).

Also Essentials of Psychiatric Diagnosis: Responding to the Challenge of DSM-5 (Chapter 16): Allen Frances, Guilford Press (June 2013).

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Further reading

Objection to proposal to insert DSM-5′s Somatic symptom disorder into ICD-10-CM Suzy Chapman, Public submission, ICD-9-CM/PCS Coordination and Maintenance Committee Meeting September 18-19, 2013

APA Somatic Symptom Disorder Fact Sheet APA DSM-5 Resources

Somatic Chapter Drops Centrality Of Unexplained Medical Symptoms Psychiatric News, Mark Moran, March 1, 2013

Somatic Symptoms Criteria in DSM-5 Improve Diagnosis, Care David J Kupfer, MD, Chair, DSM-5 Task Force, defends the SSD construct, Huffington Post, February 8, 2013

The new somatic symptom disorder in DSM-5 risks mislabeling many people as mentally ill Allen Frances, MD, BMJ 2013;346:f1580 BMJ Press Release PDF for full text

Somatic Symptom Disorder could capture millions more under mental health diagnosis Suzy Chapman, May 26, 2012

Mislabeling Medical Illness As Mental Disorder Allen Frances, MD, Psychology Today, DSM 5 in Distress, December 8, 2012

Why Did DSM 5 Botch Somatic Symptom Disorder? Allen Frances, MD, Psychology Today, Saving Normal, February 6, 2013

New Psych Disorder Could Mislabel Sick as Mentally Ill Susan Donaldson James, ABC News, February 27, 2013

Dimsdale JE. Medically unexplained symptoms: a treacherous foundation for somatoform disorders? Psychiatr Clin North Am 2011;34:511-3. [PMID: 21889675]

Objectors to insertion of DSM-5’s Somatic symptom disorder into ICD-10-CM

Post #283 Shortlink: http://wp.me/pKrrB-3y8

Michael Munoz, Executive Director, Rocky Mountain CFS/ME & FM Association has organized a joint letter of objection signed by 13 U.S. patient organizations and advocates for submission to NCHS. It can be read here:

http://www.rmcfa.org/index.html > http://www.rm-cfs-fms.citymaker.com/f/NCHS.pdf

or download PDF here: Joint response to NCHS 11.15.13

This joint submission had been signed by the following organizations and advocates:

Michael Munoz, Executive Director, Rocky Mountain CFS/ME & FM Association
Lori Chapo-Kroger, RN, President & CEO, PANDORA Org
Charmian Proskauer, President, Massachusetts CFIDS/ME & FM Association
Tamara Staples, President & Co-Founder, Fibromyalgia – ME/CFS Support Center, Inc.
Donna Pearson, Vice President, Massachusetts CFIDS/ME & FM Association
Jean Harrison, President and Founder, MAME – Mothers Against Myalgic Encephalomyelitis
Denise Lopez-Majano, Founder, Speak Up About ME
Rik Carlson, President, Immunedysfunction.org
Jennifer M. Spotila, JD., Occupy CFS blog, Patient Advocate
Billie Moore, Patient Advocate
Charlotte von Salis, JD, Patient Advocate
Mary Schweitzer, Ph.D., Patient Advocate
Mary Dimmock, Patient Advocate

I’d like to thank all those who have submitted objections to NCHS in opposition to the September 2013 C & M Committee meeting proposal to insert Somatic symptom disorder as an inclusion term in ICD-10-CM.

My submission can be read here PDF: Submission NCHS

Some additional organizations and individuals have advised me of their own submissions. If you have submitted a response on behalf of your organization or as a patient, advocate or professional and you would like your name or your organization’s name added to the list of responders below please shoot me an email or contact me via the Contact form with a link to your submission (if it has been placed in the public domain) and a couple of lines of credentials or stakeholder interest, if desired.

Bridget Mildon, Patient advocate and Founder of FND Hope, Inc. FND Hope is the only state registered non profit patient advocacy organization specifically for those assigned a diagnosed of Functional Neurological Disorder. Bridget was misdiagnosed with FND and continues to advocate for those with a FND diagnosis to receive appropriate patient care fndhope.org Submission
Mark Thompson, patient. Submission
Diane O’Leary, Ph.D. is a philosopher focused on the rights of medical patients denied medical care because of mistaken somatoform diagnoses. She is author of the book, Patient, Executive Director of the Sneddon’s Foundation, and author of numerous web and print entries on Sneddon’s Syndrome, a highly threatening cerebrovascular disease generally mistaken for somatoform disorders. Dr. O’Leary is author of “Peculiar Silence: The Problem of Error in Diagnosis of SSD” (a reply piece at BMJ). Dr O’Leary has coauthored several blogs, published and forthcoming, with Prof. Allen Frances at Huffington Post, Psychology Today and Psychiatric Times. New work is forthcoming for the National Organization for Rare Disorders and Ben’s Friends. An audio interview with Dr. O’Leary is available here. PDF Submission also Submission [On LinkedIn]
Suzy Chapman, DipAD, UK carer/advocate for young adult with long-term illness. Owner of website Dx Revision Watch, Monitoring the revision of DSM-5 and ICD-11. Co-author of journal papers and commentaries on the Somatic symptom disorder construct (with Professor Allen Frances). PDF Submission
Richard A. Lawhern, Ph.D. is an 18-year patient advocate. He writes content and moderates for “Living With TN,” a social networking site that supports nearly 5,000 chronic face pain patients in 117 countries – many of whom have been substantively harmed by mis-application of psychosomatic diagnoses. Submission
Angela Kennedy, M.A. (also retired R.G.N.), social science lecturer and researcher. Author of the book Authors of our own misfortune?: The problems with psychogenic explanations for physical illnesses (2012) Village Digital Press. Carer and parent of disabled woman who became ill at 12 years of age.
Gail Kansky, President, National CFIDS Foundation, Inc. Needham, MA http://www.ncf-net.org Submission
Jack Carney, Ph.D., DSW, Brooklyn, NY, Committee to Boycott the DSM-5, contributor to Mad in America. A social worker, Dr Carney writes on the contradictions and hypocrisies of the public mental health system and promotes and applauds acts of resistance to it.
Jennifer Brauer, BA, Women’s Studies, University of Massachusetts. Former certified paramedic, Emergency Medical Technician BLS, Bureau of The Emergency Medical Services, NY City Fire Dept. (1996-2005).
Samuel Wales, author, The Kafka Pandemic
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